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Lynne48's avatar
Lynne48
Member
11 years ago

How important is your GP

I have only recently moved to Perth, so didn't have a GP. I chose to make an appointment with a local clinic, when I noticed a lump in my breast. Two weeks on, I have been diagnosed with stage 3 breast cancer & have surgey booked for 25 Feb for a full mastectomy & removal of all left lymph nodes. The first GP I saw was a locum, so was then passed onto the regular GP (a male), who doesn't seem to have much experience in the process, but is very caring, having rung me three times to see how I am & where I am at with Treatment. Because of the GPs lack of experience I decided to see another one (female). Both my husband and I explained to her how important it was for us to have a GP with experience and who could support us through this journey. She seemed to be the one. However, I had my bone and CT scans last Friday, an appointment with my surgeon on Monday and have yet to hear anything from her. I left a message for her on Thursday, but still no return call. What should I do? Try and find another GP? Go back to the original GP? I have no idea what to do. Am feeling helpless.

19 Replies

  • Your GP is important through your breast cancer treatment in several ways.

    First, the GP is the person you had to see for the referral to a breast surgeon, etc, unless you came through via Breast Screen, who may have done your referral for you. My GP wanted to know if I had private cover, because she would be happier with the service I would get through the medical providers in the private system than in the public system. Her first suggestion was Peter Willsher at the Mount Hospital in Perth, told me she was referring me to him because he is very competent, very experienced and also very gentle and easy to talk to. She said gentle is a vital quality in your surgeon when you have breast cancer. She rang on Wednesday while I waited and she  made an appointment for me to see him on the next Monday. He was kind enough to give me his direct number so I could ring over any serious post op concerns. He referred me to Arlene Chan, oncologist, who is his wife.

    Second my oncologist said that your GP is the person you see for any symptoms or sickness that comes on slowly during chemo. If I had sickness or symptoms during chemo that came on fast, I was to ring the oncology nurses or the ward, and ask them to check directly with her what to do. Or to go straight in to the oncology ward. I told my GP this, and that I may need to see her urgently if I got sick like this, and could not wait a week for an appointment. She put a note for the receptionists on my file saying must book same day appointments if requested: chemo patient.  They were brilliant.

    Third, after chemo, and targetted treatment and radiotherapy is finished, apart from the regular 3-6monthly checks with surgeon and oncologist, your GP is the person who co-manages any post-treatment symptoms and  concerns. He/she may be first port of call if you are worried that you may have a new primary cancer or a recurrence, and it is important they remember you had breast cancer and send you for scans or blood tests where this is appropriate.

    My GP makes a point of hunting out the best people for her referrals list. She told me she only refers to the people she would send her own family to or go to herself. And she gets feedback from patients that help her decide who might suit which patients best. She does not know all there is to know about breast cancer, and has not heard about some of the things that seem very basic to me as someone currently going through breast cancer treatment. But she has brilliant referrals, and knows the important stuff, is kind, very caring, and has been good to deal with.

    To find out who are the really good GPs in your area, try asking the receptionists at your breast surgeons. Or the breast care nurse at the hospital (ring the breast cancer ward and ask to speak to a breast care nurse). I find that  Medical Centre receptionists generally recommend and book patients in to the doctors with fewest patients. These are either not very good or brand new out of training, or maybe still in training. But if you go and talk to the Medical Centre Manager, and explain that it is important to find a very experienced female doctor who knows a lot about breast cancer treatment, she may be prepared to suggest the best one/s for you.

    Also, I have come across a number of lovely women GPs who were a bit offhand with their patients because they were just so busy  because of the shortage of women doctors, and who were away for a year or two every two or three years to have their next babies.My current GP has already had her children, but has to juggle her hours so to look after both her kids and her patients. Personally, I would rather have a GP who was intelligent and competent and very kind, who was keen to learn and very supportive even if it was a man, than a woman I did not feel was there for me.

    best wishes

  • Hi Lynne, Do you have a McGrath breast care nurse locally? I found her to be a great support. Like you I was waiting to hear back from results, she contacted the surgeon on my behalf and he soon phoned me with my results.
  • Hi Lynne, Do you have a McGrath breast care nurse locally? I found her to be a great support. Like you I was waiting to hear back from results, she contacted the surgeon on my behalf and he soon phoned me with my results.
  • Thanks Sarah. I am pretty nervous about the op. Not getting much sleep. I have never had a general anaesthetic, let alone an operation. It really helps hearing from women like you that have been or are going through the same thing. Hope all goes well with your radiotherapy. x
  • Hey Lynne, I have been going through Sir Charles gairdener hospital. My friend has been through the mount and has been very happy with her treatment there. I have just finished 6 rounds of chemo, I still have a year of herceptin to go and I start radiotherapy next week. I had a mastectomy and auxiliary clearance back in September . Good luck with your surgery , iam sure your feeling nervous, but really it's not too bad at all. It's a long road ahead, but one day at a time and you'll get through. I look forward to hearing how you get on. X
  • Thanks so much for your comments Deanne, Sezzy & Robyn W. You have lifted a huge weight. I am going to return to my local GP. Sezzy, I am going through The Mount. my surgeon is Dr Peter Willsher. Where are you going? What state of your treatment are you at?
  • Waiting for results and appointments is the hard part at the beginning of all this but my experience was the same as Robyn and Sarah. Once my GP referred me to the surgeon all reports, scan results etc were through the specialists. I only saw my GP a couple of times during my treatment for minor issues and also for updates of referrals for the surgeon, oncologist, radio oncologist. Once things got underway, my oncologist was probably the doctor who I had the most contact with. Down the track 21 months, I now see my surgeon and oncologist at 6 month intervals and my GP for any other health issues. Wishing you all the best for your treatment. It really does move quickly once you see your surgeon and before you know it you are well and healthy again. Take care and use this network to keep in contact with others going through all this too. Unfortunately there are just way too many of us. But the treatment here in Australia is excellent. Deanne xxx
  • Hi Lynne, I live in perth too, which hospital are you going through for treatment ? That's a tricky situation with your GP. To be honest I haven't seen mine to much throughout my BC treatment. But the GP is one of your first points of call if your experiencing any issues, such as infection. I would probably stick to the GP who has taken the time to contact you. He will always refer to your oncologist if there was anything major . As long as you feel comfortable to talking to him, I think that's most important. Good luck with everything. Sarah
  • Hi Lynne, I live in perth too, which hospital are you going through for treatment ? That's a tricky situation with your GP. To be honest I haven't seen mine to much throughout my BC treatment. But the GP is one of your first points of call if your experiencing any issues, such as infection. I would probably stick to the GP who has taken the time to contact you. He will always refer to your oncologist if there was anything major . As long as you feel comfortable to talking to him, I think that's most important. Good luck with everything. Sarah
  • Hello Lynne, for me ,my GP is really just the one who makes referrals for me,and the one I see for everyday stuff.For my BC,right from the beginning,my GP sent me for my mammogram and ultrasound, referred me to a surgeon,and after that,I didn't see him again for my Cancer.My surgeon referred me to an oncologist( who works at one of the hospitals he operates at) and ever since then,I have been seeing my oncologist throughout treatment and after.I had a bone scan,and the results went to my oncologist.My GP only gets a copy,which is standard practise I think.All my other tests such as heart test,different blood tests,bone mineral density,have all been ordered by my oncologist.I think you will find that as soon as you have had your surgery,your surgeon will recommend you to an oncologist.I saw my oncologist for the first time,about 2 weeks after surgery.I hope this helps.Cheers Robyn