Forum Discussion
arpie
7 years agoMember
I agree, @Artferret & @Sister - I truly believe that most health officials just 'switch off' (and yes, get annoyed) as soon as 'side effects' are mentioned (I am pretty sure I saw my original Onc 'roll his eyes' when I mentioned mine! The meeting only lasted 5 mins!) - as they would be hearing it from most of their patients on AI & Chemo at every appointment. It would be the main topic of conversation at every appointment, I reckon.
You would assume they would know someone personally who has also gone thru these painful side effects - possibly even family members - yet they continue to disbelieve us. Maybe we need some sort of online petition requesting that it be investigated as a priority? I'd be prepared to try that tablet mix that they've put together for the men with Prostate cancer who are on hormone tabs as well (with similar side effects to us) ..... but we weren't invited to be a part of the trial - so we don't know if they would 'work for us'! They are simple meds already available - nothing 'special or expensive!'
I think that most of us would agree that a CT Scan or MRI should be standard procedure when anyone is diagnosed with cancer - to get an 'as now' picture of the whole body & also see if the cancer has already advanced. Then there is something to compare it with later, if needed - otherwise they are only guessing. It will also show any tendon/muscle damage .... it is a no brainer!
You would assume they would know someone personally who has also gone thru these painful side effects - possibly even family members - yet they continue to disbelieve us. Maybe we need some sort of online petition requesting that it be investigated as a priority? I'd be prepared to try that tablet mix that they've put together for the men with Prostate cancer who are on hormone tabs as well (with similar side effects to us) ..... but we weren't invited to be a part of the trial - so we don't know if they would 'work for us'! They are simple meds already available - nothing 'special or expensive!'
I think that most of us would agree that a CT Scan or MRI should be standard procedure when anyone is diagnosed with cancer - to get an 'as now' picture of the whole body & also see if the cancer has already advanced. Then there is something to compare it with later, if needed - otherwise they are only guessing. It will also show any tendon/muscle damage .... it is a no brainer!