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Chrisy's avatar
Chrisy
Member
12 years ago

Hormone Drugs

Here I am after first opp. June 2011 lumpectomy, second opp. removal of left breast, more had to be taken. Chemo from August to December 2011, Radiotherapy January 2012 to February. Took Tamoxifen side effects were stiff joints, tried Tamosin, same thing and getting worse then Arimidex. No improvement finaly Exemestane.  Had to go to a Rheumatologist who perscribed Plaquenil and Celebrex for Osteoarthritis. Went off all hormone drugs and eventualy got my movement back. Stopped taking Plaquenil (which may damage eyes) and Celebrex when I began to enjoy walking and energy came back. Now I have an appointment with a plastic surgeon, discussed taking Hormone drugs with my oncologist and am willing to try again. Something in the Chemo and these drugs brings on Ostioarthritis in my body. Going to see how I go because I do not want the big C again. Now I will be taking three tablets a day to delay any further cancer and deal with the side effects. Wish me luck.

 

8 Replies

  • Sweet Janey, hope you are out of the wars.  Hormone drugs are not the answer for me! You must be such a strong lady! Dropping everything I try to grasp, the horrific pain in my joints after 4 days, went off Femera. It was my fourth try at Hormone treatment 6 months was the most I could bare on any of them. I pray a lot. My appointment with the surgeon is the 18th December and I have joined the 61026 group you recommended. My quality of life is great, I will be able to enjoy taking care of my grand children during the holidays and create more fun memories for them. I am also counting on them to help me get rid of a few kilos. None of us can be sure of the future, I am more comfortable with enjoying every moment now. I truly admire your persistance with these drugs.

     

  • Hi Chrissy, like Janey, I have also had reconstruction, but with expanders and implants. If you join the Reconstruction group, you can see my recon photos as well. Love Chris xx
  • I feel for you so much. It's so hard trying to make decisions and making sure they are the right ones. I'm sending you a link to a wonderful group called Breast Reconstruction http://www.bcna.org.au/group/61026. The group was started by Louise Turner back in July this year. I was the first to join as Louise was a wonderful support to me when I was so undecided about reconstruction and had so many questions and she was so generous with sharing her story as she'd been down this path before me. We both felt that there was not enough information for Australian women about 'real' women's experiences with reconstruction and Louise formed the group. It has now 167 members which is sad really that there are so many women going through BC but also confirms the fact that we are certainly not alone. Many of us have benefited from the shared experiences here (thanks Louie).

    Chris there is a wealth of information, advice and stories here and I'd urge you to join. The group is totally private and only open to its members to view the posts. There are photo stories, one of which is about my own experience with DIEP/TRAM flap recon as well as many others with different procedures. Once you have joined, you can find posts by 'filter by tag' which is on the right hand side of the blog pages. This group of beautiful women have supported, encouraged and listened to each other and I for one am so glad Louie had the foresight to create it.

    I'm sure you'll find what's right for you Chris. 

    Love Janey xxx

     

     

     

     

     

  • Thank you so much for your comments. The whole Cancer treatment is so confusing, the decisions you have to make that is. I am surrounded by lots of loving people, but it does not seem to help. I take heart in hearing from people who have been through it.

    I have met a lot of people in my area, Nerang Qld. who are just starting to go through Chemo and try to give encouraging words. My battle now is not wanting to go out because I have to get dressed and that takes me a while, making sure everything is sitting in the same place after bending or just moving around. I have to work hard to pull myself out of depression. It has only hit me now that I am getting better how uncomfortable and annoying the prosthesis is. Scars can't be helped but a shirt that doesn't sit right annoys the hell out of me.

    I would like to hear from anyone who has had reconstruction, how long you are out of action and what I should ask or look for. Again thank you for your comments and much love xxx to you Janey and Chris

  • Thank you so much for your comments. The whole Cancer treatment is so confusing, the decisions you have to make that is. I am surrounded by lots of loving people, but it does not seem to help. I take heart in hearing from people who have been through it.

    I have met a lot of people in my area, Nerang Qld. who are just starting to go through Chemo and try to give encouraging words. My battle now is not wanting to go out because I have to get dressed and that takes me a while, making sure everything is sitting in the same place after bending or just moving around. I have to work hard to pull myself out of depression. It has only hit me now that I am getting better how uncomfortable and annoying the prosthesis is. Scars can't be helped but a shirt that doesn't sit right annoys the hell out of me.

    I would like to hear from anyone who has had reconstruction, how long you are out of action and what I should ask or look for. Again thank you for your comments and much love xxx to you Janey and Chris

  • Hi Chrissy! I have been on Femara for 2.5 years. I used to get awful side effects to start with, and for over a year,but I am happy to say that all side effects seem to have finally eased. I did find large doses of fish oil really helped, and now I just take 2 tablets a day. I did have stiff joints and hobbled like an old lady. I also had inflamed tendons in my thumb and wrist area on both hands for 10 months, and also 4 trigger fingers with no grip strength in my hands. All that has gone now,but it is only in the last few months that the final side effects have abated . Good luck, and I do hope with time your side effects will disappear. Love Chris x
  • I am sending you lots and lots of luck for your treatment. After all you've gone through, surely some good luck is due. Love Janey xxx
  • I am sending you lots and lots of luck for your treatment. After all you've gone through, surely some good luck is due. Love Janey xxx