Forum Discussion

Riverside's avatar
Riverside
Member
4 years ago

Hormone blocker - Aromasin

Hi Everyone,
I hope you are all having a beautiful day.
I want to ask a question: I have been taking Aromasin for the last five years and will finish at the end of the year.
I had BR twice and ended with a double mastectomy.; my whole body is aching, especially my legs.
Does anyone know if it will get better when finishing the medicine?
I really appreciate any help you can provide.
Flavia x 


  • Riverside's avatar
    Riverside
    Member
    4 years ago
    @arpie, I know, thank you. 
    Who can prescribe me the can is oil? 
    Thank you 
    Flavia 
  • arpie's avatar
    arpie
    Member
    4 years ago
    I am going much better just now, thanks @Riverside.  I was on 'the magic oil' for 2 years (medicinal cannabis oil) and that really helped - but I've been off it for most of the year, and going fine - as I also have arthritis, any aches/pains are more from age than medications.  No longer 'excessive' .... 

    I hope you get almost immediate relief once you stop .... tho in reality, it will probably take a month or so to get out of your system. .... 

    Well done for sticking it out for the full 5 years xx. Many don't!
  • Riverside's avatar
    Riverside
    Member
    4 years ago
    @arpie thanks forma tour response. I only have a week to go. But the aches and pain have been with me for a while. I just want to know if I will feel better 😥.
    How are you doing now?
  • arpie's avatar
    arpie
    Member
    4 years ago
    Hi @Riverside

    Merry Xmas - I hope you've had a great day too - and all the best for 2022 xx

    Well done for lasting on Aromasin for 5 years already! 

    Has the aches & pains only just started to happen?   Have you changed brands recently? 

    I started out on Letrozole for 6 weeks and had extreme aches & pains (specially in the legs) & then I was on Exemestane/Aromasin for 6 months & I gradually got the same aches & pains & then changed to Anastrozole & I've been doing much better (for the last 3.5 years.)

    Can you ask your Onc if you can have a bit of a break from it?  See if the pain diminishes?

    I understand (and hope) that the aches & pains SHOULD diminish/stop once you stop taking it - tho it may take a little time ...

    Hopefully someone who HAS gone off it will be able to jump onto the thread to confirm that .... 

    take care xx