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ReenieBabe's avatar
ReenieBabe
Member
12 years ago

Hello

Hi Everyone

In 2008 I was diagnosed with IBC.  Full treatment etc. (won't bore you all here!!).

I originally began searching for information on the web and was so disullusioned by what I read - apparently I had no hope at all.  Well nearly 6 years later and I am enjoying life - no sign of the dreaded thing at all.  Not bad for someone who was given just months to live.

There is hope - and I am so glad that IBC is beginning to get more know.  This will occur as we all spread the word.

I have spoken with BCNA about raising the profile as I get constantly worried that many women believe a 'clear' mammogram means all is okay. (only had mine weeks before I was diagnosed).

Best wishes to everyone out there.  Happy to speak with anyone who wants to know more.

Luv

Corinne

4 Replies

  • Lynette's avatar
    Lynette
    Member
    11 years ago
    Hi Ladies, There is always hope ! I was diagnosed with IBC 10 yrs ago, did the chemo and radiation merry go round and have been on Aremidex ever since. Not bad considering the Drs gave me 2 yrs. so Never give up ! Blessings
  • Lynette's avatar
    Lynette
    Member
    11 years ago
    Hi Ladies, There is always hope ! I was diagnosed with IBC 10 yrs ago, did the chemo and radiation merry go round and have been on Aremidex ever since. Not bad considering the Drs gave me 2 yrs. so Never give up ! Blessings
  • Laura_Crowden's avatar
    Laura_Crowden
    Member
    12 years ago

    Agree with you both, hopefully this story will help raise awareness of IBC!

    Cheers, Laura

  • ReenieBabe's avatar
    ReenieBabe
    Member
    12 years ago

    Hi Robyn

    Yes - I did contact them about my story - will see if they contact me.

    luv

    Corinne