Graves disease

I have had Graves disease with symptoms  on and off for around 9 years now. We thought I had successfully treated it with medication (twice)  but alas it flared up again around the same time as my bc diagnosis...I just assumed I was stressed from surgery etc but a lot was the symptoms of hyperthyroidism  (plus I was stressed too!!). Anyway I am back on medication and will probably have to look at a permanent solution eventually but my endocrinologist is in no hurry. He thinks my body has been through enough and since medication is working we are still going with that at the moment.

Graves disease can't be absolutely diagnosed by blood test alone so the scan is confirming the diagnosis and excluding anything else. (There is a condition called multinodular goitre and it doesn't resolve with medication and of course the dreaded C word but less likely given blood results etc. Also hashimotos hypothyroidism can initially present with high levels of thyroid then ut swaps to hardly any) The ecg is to ensure the high thyroid levels aren't causing abnormal beats....which it can. Uncontrolled Graves is life threatening (abd also makes you feel nervous, exhausted and jittery) so it's important to follow the plan set out. X

Thanks @primetek I felt like something was going to high that was not in my radar.  Wtf.  So he precrived medication should I start it or wait until the scan I might go see if I can go get the scan tomorrow we are meant to go away next week for a few nights camping.  I jus my told dh I can’t have any stress in my life

The medication can take weeks to work so I'd start it. 

Hi @DearB I have Graves Disease which has responded well to Neomercazole several times since 2004. Currently in remission and, to my surprise, has not been triggered by the BC diagnosis and treatment (Lumpectomy, single mastectomy and started Taxol a couple of weeks ago after 4 X AC 3 weekly) all since August. We add the thyroid function tests to the others 3 monthly and they go to my endo - as she says, 'if it flares up we just start again'.  It takes a while for the medication to get things level again, the tests are the best indicator, and once you know what are normal levels for you it really helps. It can be scary when it first happens, I had no idea what it was and my levels were off the page. Good luck!

@primek and @volunty. Just a quick question I have had a sore throat on and off for a month now but dr said when I start tablets let him know if I get a sore throat as that’s a bad sign.   My throat is sore today but that could just be in the head how much Of a sore throat do you go with?  Are there any other side effects of this graves medication. I panicked last night assuming it was called graves due to symptoms not knowing it’s named after dr graves.    

Sorry that I am banging on about a sore throat !!!!

My friend just said his only sends what we can handle.     Mmmmmm.      She knew I was getting results yesterday.    Thanks god

No totally get it. It's more like a strep throat and usually if it happens its after a while on tablets. So think of your sore throat today as your baseline. I never had any problems with swallowing or sore throats with any episode (weirdly) and not with medication. You should have a medication slip from the chemist which explains it. It's because some people get low white cell counts...so like a sore throat concern on chemo. Hope that helps.

Okay

Sit wtf. I had another long email below the okay. This is shit.   Anyway I had scans today and tech Said it all looks ok consistent with Graves.  I think what will Be will Be and no use me stressing.   We go camping next week so will make dr appointment for first Monday back I think the 8th.