got my bloods back and have been diagnosed with Graves’ disease dr said it’s very common and has prescribed medication. Also requested a ecg and scan on my enlarged nodule? I have had a sore throat on and off for a good few weeks it just never went anywhere. But it’s sore right now.

@"Debbie J" It's odd you haven't been started on medication. How did they diagnose it?. The treatment is as others have said to take thyroxine. I think you need an urgent appointment with a GP. This is bread and butter stuff for GPs as it is very common.

I have had Graves disease with symptoms on and off for around 9 years now. We thought I had successfully treated it with medication (twice) but alas it flared up again around the same time as my bc diagnosis...I just assumed I was stressed from surgery etc but a lot was the symptoms of hyperthyroidism (plus I was stressed too!!). Anyway I am back on medication and will probably have to look at a permanent solution eventually but my endocrinologist is in no hurry. He thinks my body has been through enough and since medication is working we are still going with that at the moment.Graves disease can't be absolutely diagnosed by blood test alone so the scan is confirming the diagnosis and excluding anything else. (There is a condition called multinodular goitre and it doesn't resolve with medication and of course the dreaded C word but less likely given blood results etc. Also hashimotos hypothyroidism can initially present with high levels of thyroid then ut swaps to hardly any) The ecg is to ensure the high thyroid levels aren't causing abnormal beats....which it can. Uncontrolled Graves is life threatening (abd also makes you feel nervous, exhausted and jittery) so it's important to follow the plan set out. X

Thanks @primetek I felt like something was going to high that was not in my radar. Wtf. So he precrived medication should I start it or wait until the scan I might go see if I can go get the scan tomorrow we are meant to go away next week for a few nights camping. I jus my told dh I can’t have any stress in my life

The medication can take weeks to work so I'd start it.

Hi @DearB I have Graves Disease which has responded well to Neomercazole several times since 2004. Currently in remission and, to my surprise, has not been triggered by the BC diagnosis and treatment (Lumpectomy, single mastectomy and started Taxol a couple of weeks ago after 4 X AC 3 weekly) all since August. We add the thyroid function tests to the others 3 monthly and they go to my endo - as she says, 'if it flares up we just start again'. It takes a while for the medication to get things level again, the tests are the best indicator, and once you know what are normal levels for you it really helps. It can be scary when it first happens, I had no idea what it was and my levels were off the page. Good luck!

Graves disease | BCNA Online Network

28 Replies

DearB
Member
7 years ago
Lol I actually am not a cake person I can take or leave it (not like the chippies). But I committed 110% for my work friend and had to give feedback 🤪 they were all very yummy 😋
Blossom1961
Member
7 years ago
@DearB The things we do to help others. I go out of my way to test out cakes for people too! Great job.
DearB
Member
7 years ago
Oh I had a check up this week and dr at hospital is very happy my results he doesn't want to see me for 4 months this time 🤗 I mentioned I will be moving soon and he asked if I want to change hospitals but I said not yet. He has been awesome so far and if the appointments get further and further apart it will be fine. Lol I mentioned I have gained 5 kegs in the last year and asked if it was the tablets
he said I should have a honest review of my diet mmmm rude however true somehow my office has started this thing where every single days there are chippies and I am now known as the chippy monster they swear I have a sixth sense for when they open them. (It's a real skill). And one of the ladies got married yesterday and her partner was making their wedding cake so she has been brininging cake in every week for us to trial ( I took that very seriously for her and had to try them all how could I not)
primek
Member
7 years ago
@"Debbie J"

It's odd you haven't been started on medication. How did they diagnose it?. The treatment is as others have said to take thyroxine. I think you need an urgent appointment with a GP. This is bread and butter stuff for GPs as it is very common.
Debbie_J
Member
7 years ago
Thank you so much. Will talk to him about x
iserbrown
Member
7 years ago
@primek
kmakm
Member
7 years ago
Hi @"Debbie J" I was diagnosed with Hashimoto's in 2003 after my daughter was born. I was prescribed thyroxine immediately, 50mcg, then 75, finally settling on 100mcg daily. I saw an endocrine specialist to do all this.

Hashimoto's is quite common and everyone I know who has it takes thyroxine. I would be asking your GP why you haven't been prescibed any. There may be a good reason.

My cancer treatment did not affect my hypothyroidism to my knowledge.

Good luck, and let us know how you get on. K xox
Debbie_J
Member
7 years ago
Hi ladies I am 9 years cancer free on the 10th March. I have been diagonsed hashimotos hypothyroidism . My Dr has not given me any medication for it. My voice sounds horse after talking for a while and I get very nervous. Concerned my Dr is not doing anything.
primek
Member
8 years ago
Lol.
DearB
Member
8 years ago
I have google eyes.