Forum Discussion
arpie
3 years agoMember
Congrats on finishing your active treatment, @Molly .... well done. Everything is still very fresh for you - so it is totally natural that you are still concerned & feeling anxious ..... listen to your Onc - they are doing their utmost to make sure that you've had the best treatment available ....
Re replying to others when they ask - I just say "So far, so good'' .... You can add there is NED (No Evidence of Disease) ... but this disease really does muck with your brain as much as your body.
After my active treatment finished, I went to Norfolk Island for a week as my 'prize' .... and it was terrific. I came back refreshed, renewed & looking forward, not backwards.
Don't forget to contact Otis Foundation and look at lining up your 'getaway' ....
Before covid, you could go interstate to the 'other' getaways - but I think now, you can only attend the ones in your own state. Luckily NSW has quite a few .... but it can be a few months or more before a vacancy may be available to you .... so get in touch with them sooner than later. You can take family and/or friends - and have a great getaway.
http://www.otisfoundation.org.au/directory
take care & all the best xx
Re replying to others when they ask - I just say "So far, so good'' .... You can add there is NED (No Evidence of Disease) ... but this disease really does muck with your brain as much as your body.
After my active treatment finished, I went to Norfolk Island for a week as my 'prize' .... and it was terrific. I came back refreshed, renewed & looking forward, not backwards.
Don't forget to contact Otis Foundation and look at lining up your 'getaway' ....
Before covid, you could go interstate to the 'other' getaways - but I think now, you can only attend the ones in your own state. Luckily NSW has quite a few .... but it can be a few months or more before a vacancy may be available to you .... so get in touch with them sooner than later. You can take family and/or friends - and have a great getaway.
http://www.otisfoundation.org.au/directory
take care & all the best xx