Look even non chemo-girls need lovin' too. I was reflecting on my experience as a non chemo girl and what added to my anxiety was this webiste and most of the BCNA media releases are quite chemo focused-i looked at a article posted by bcna about 4 women with breast cancer- featured in a sydney newspapter --mascetomies, double mascetomies and chemo all round--no put down --if it is medically advised or even personal preference--best wishes but out of four women profiled --how about one with lumpectomy and radiation treatment? this network-bcna is in its words- a peak national organisation to provide best information,, inform, represent and empower...and yet here i am with a common cancer 'picture' with what is best practice- 'standard' treatment and online or with its media releases you would think that 'i' or people like me would have a larger profile..or any profile...i mean ...im not starting a chemo vs non chemo -'war' -if i had a different cancer or differnt breast ca i would be at the front of the chemo line (with a sedative on board) but i posted my results and treatment with a view of a woman who maybe going online in the future and my story might be one of the few she reads that reflects on of her choices given. I value choice -but these online forums and handbook--whilst useful --can influence treatment options and choice. I started doubting my own and thinking i was on a fringe path with people sitting under 'golden pyramids' -- so much so that when i posted i knew that it would not make it as a 'featured post'. Experts are in the medical field and amongst us here with our experience. The support for women having chemo and mascetomies is clearly here for that --would like the same support for women who have a similiar kind of courage --but different story to tell...
BCNA recently acknowledged that not all women will successful 'fight' cancer; i liked how it recently profiled a woman with secondaries, from my perspective i wish that a range of women's experiences were 'represented' both here and in their media.