Jacqueline
15 years agoMember
Good Morning
Hi out htere, well on my 3rd lot of anbtibiotics and finally have some relief from this nasty staph infection.
Busy week saw medical oncolgist yesterday, I am going to be given the works, chemo, ra...
Hi Jacqui, sorry to hear about the bone scan, fingers crossed it will be nothing major, like you say arthritis or something, I will send positive vibes your way. It's a bumpy road we travel, full of ups and downs, but just take it day at a time and cope with it that way.
It's 8 days since my 1st chemo and I can't say it has been a pleasure trip but I have somehow found the strength to cope...just! The first couple of days were fine, but I then became very constipated and nothing seemed to be working. In the end they told me to use colonlytey and that sure worked!! It was like draino!!
Days 4 and 5 were my worst with very bad aches and pains in my whole body (side effect of the taxotare) and I was so weak, nothing seemed to ease it, but it did go away by the end of Day 5. Next came a few mouth ulcers, despite following all the guidelines of mouthwashes, dry mouth spray, brushing my teeth etc, but they are not too bad...just a couple on the end of my tongue. I use kenalog but my Dr prescribed Sucralfate which is usually for stomach ulcers but you can dissolve the tablet and make a mouthwash..I used it last night wih fantastic results!
I still tire easily, my stomach often feels "off" and my appetite is suppressed, but I just try to deal with each thing as it comes and try not too look too far ahead. I am going in to work tomorrow to discuss a return to work on reduced hours, may just do half days to start with and see how I go. I will still need a few days off around chemo time if the same symptoms appear on days 4 and 5.
I have good and bad days....after all, it is only 5 weeks since I was diagnosed and in that time I have had surgery, started chemo, visited the radiation oncologist, have regular physio for my arm, tols family and friends and then sometimes I sit back and think.."Is this really happening to me?" I try hard to stay positive, but I have times were I just have a little cry and become fearful of the future. I have lost that certainty of growing old, seeing my kids grow and marry...seeing their children...Oh. I hope to still do all that...but that "certainty" is lost forever..and I am still coming to terms with that!
So, we all have to stay strong, put on a brave face and say "WE CAN DO THIS"....our faith may be tested, our wills challenged...but by God, I will keep on fighting.
Good Luck tomorrow...you will be fine, and I am here if you ever need to talk
Jenny xx