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goldnolde's avatar
goldnolde
Member
15 years ago

goldnolde

Hi there.  I'm a new user of this network so still finding my way around.

It's been 16 months since I had my mastectomy and axillary clearance.  Chemo finished last June and Radiotherapy last August.  Have just finished my Herceptin infusions and just on regular checks and Arimidex for the next 4 years. Just wondering if anyone has had 'peripheral neuropathy' as a result of their treatment.  I have it quite bad in the feet and hands and sometimes is quite debilitating.  I haven't been able to return to work as yet because I still have good and bad days.  I have been on anti depressant and anti epileptic medication for pain management but they have done no good at all.  I am going to a Reflexologist next week so am hoping that will help. I have, in the past, enjoyed outdoor activities eg golf, tennis, walking, bike riding but find I cannot do any of these activities now which is so very frustrating.  Any suggestions at this stage would be very much appreciated as I have had this for 9 months now.  It seemed to appear after my Taxotere chemo treatment.  My surgeon said it would go in time but it just seems to be getting worse instead of improving.  Thank you

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  • goldnolde's avatar
    goldnolde
    Member
    15 years ago

    Hi Wendy

    Thank you for your comment and good wishes. I noticed my problems with my feet gradually got worse when I started Taxotere and Herceptin and haven't been real good since.  I can't get in for another reflexology treatment until July unless there is a cancellation so a bit disappointed with that.  I don't really feel a great deal of difference since the treatment but will wait until I have had another couple then decide.  Trouble is it is quite expensive to have the treatment and haven't been able to return to work so finances are a bit stretched at the moment so I really hope I notice a difference next time.  Hope you don't get a repeat of your problem and all goes well for you.

     

    Cheers

    Fay

  • Wendy_Stip's avatar
    Wendy_Stip
    Member
    15 years ago

    I didn't know what I was suffering from had a name. I'm off for my 5th round next week of taxotere & herceptin. For my 2nd & 3rd treatments, I had a reflexology treatent before the chemo, but couldn't get in before the 4th. Had the 4th round on the Wednesday & had to hobble in for my reflexology treatment on the Friday. Both of my feet had swelled up & were very painful to walk on. Had my reflexology treatment & hobbled home. The next day the swelling & pain went away. My toes have a slight numbing, but at least no pain. Keep up the reflexology as I believe it will help.

    I'm hoping by now that it has started to relieve the pain for you as well.

    Take Care, Wendy

  • goldnolde's avatar
    goldnolde
    Member
    15 years ago

    Hi Tonya

    Thank you for your info on Vit B.  Will look into that further.  I'm on multi vitamins which have Vit B in them but may not be enough.   You are right about having to accept what we can't do for now.  Is very difficult when you have been very active all your life and all of a sudden everything has to stop, job and all.

    Regards Fay

     

     

  • TonyaM's avatar
    TonyaM
    Member
    15 years ago

    I seem to remember reading somewhere that vitB 6 or vitB 12(not sure) will help your peripheral neuropathy.Maybe you can google it or someone here in cyberland might know which one. I know how you feel about life's limitations. I broke my ankle a few years ago and it's never been the same since.I can't play tennis or walk briskly or wear heels or even stay on my feet after 3hrs. But we have to keep hoping that one day we'll improve but  accept what we can't do for now.

                              Tonya xx