Genomic Testing?
Hi, this is my first time posting. I was diagnosed 17 October and have had a nipple sparing double mastectomy (left breast had tumors) followed by auxiliary lymph node clearance 3 nodes had cancer. Ch...
Forum Discussion
Hi @Caccal, Welcome lovely. I can't help with the testing. I didn't even know about that one at the time.
The whole thing is heartbreaking definitely and chemo is not an easy choice to make. It is the big scary monster in the deal. So many unknowns. I think one of the worst parts at the beginning was I felt like I had no control of the situation. Don't be scared to ask questions and don't be scared to say no if you don't like something. It's a bit like a cattle call if you don't speak up. There is a system that is expected to be followed beacause it suits a good majority. That does not mean it will suit you.
No...You won't put that cannula there, it hurts
No. I don't want the Neulasta needle afterwards it makes me sick
No..I don't want a porta cath thank you.
No. We don't start until I am happy with the cold cap fit. etc etc etc.
You get the picture.
This is your gig.
Chemo stinks but as the ladies have said there are a lot of good drugs to combat the vast majority of side effects and some of us get through not too badly.
I had AC-T. The AC is somewhat average to say the least but definitely do able. I found it cumulative so the last one was a bit of a hard slog. Worst part was the hot flushes of atomic proportions and that rotten taste in your mouth. Stock up on fruit tingles.
I found Taxol pretty easy compared to AC and Rads was just a pain in the butt driving there every day.
Kept my hair with the cold cap, minimal fatigue, worked, ran the farm, did all my usual stuff. Sure there were some crappy days in amongst it and tears but there was also a lot of good things that I did along the way. Try to take photos of all the good things you do amongst it. That way when you look back that part of your life is not all about treatment.
All the best lovely. You'll get it done. What seems like an insurmountable 6 months will be gone before you know it.
Hugs
xoxoxoxo
The whole thing is heartbreaking definitely and chemo is not an easy choice to make. It is the big scary monster in the deal. So many unknowns. I think one of the worst parts at the beginning was I felt like I had no control of the situation. Don't be scared to ask questions and don't be scared to say no if you don't like something. It's a bit like a cattle call if you don't speak up. There is a system that is expected to be followed beacause it suits a good majority. That does not mean it will suit you.
No...You won't put that cannula there, it hurts
No. I don't want the Neulasta needle afterwards it makes me sick
No..I don't want a porta cath thank you.
No. We don't start until I am happy with the cold cap fit. etc etc etc.
You get the picture.
This is your gig.
Chemo stinks but as the ladies have said there are a lot of good drugs to combat the vast majority of side effects and some of us get through not too badly.
I had AC-T. The AC is somewhat average to say the least but definitely do able. I found it cumulative so the last one was a bit of a hard slog. Worst part was the hot flushes of atomic proportions and that rotten taste in your mouth. Stock up on fruit tingles.
I found Taxol pretty easy compared to AC and Rads was just a pain in the butt driving there every day.
Kept my hair with the cold cap, minimal fatigue, worked, ran the farm, did all my usual stuff. Sure there were some crappy days in amongst it and tears but there was also a lot of good things that I did along the way. Try to take photos of all the good things you do amongst it. That way when you look back that part of your life is not all about treatment.
All the best lovely. You'll get it done. What seems like an insurmountable 6 months will be gone before you know it.
Hugs
xoxoxoxo