I guess by contacting your local and federal members and the relevant Health Ministers .... and asking them to support any info that may help get the Genomic Testing available and then following overseas trends in treatments of metastatic disease after proven success from trials ....
thank you xx
","board":{"__ref":"Forum:board:general-treatment-and-surgery"},"conversation":{"__ref":"Conversation:conversation:191323"},"author":{"__typename":"User","login":"arpie"},"postTime":"2021-03-18T00:25:15.000-07:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwy","node":{"__typename":"ForumReplyMessage","uid":191324,"body":"Hi @arpie, Is there anything/anyone we can write to or email to add to the voices asking for Genomic Testing and the drugs not available here? I'm sorry you and your hubby are having a rough time of it. L x
The Genomics Health Futures Mission will invest $500 million over 10 years in genomic research. It will improve testing and diagnosis for many diseases, help personalise treatment options to better target and improve health outcomes, and reduce unnecessary interventions and health costs.https://www.health.gov.au/initiatives-and-programs/genomics-health-futures-mission.
Hi @@arpie,
I found the above as I was planning to write the the relevant ministers. It seems promising. Perhaps your husband could benefit if there are related trials. Australia needs to pull up its socks in best practice oncology!!!","board":{"__ref":"Forum:board:general-treatment-and-surgery"},"conversation":{"__ref":"Conversation:conversation:191323"},"author":{"__typename":"User","login":"Dory65"},"postTime":"2021-03-20T13:42:15.000-07:00","kudosSumWeight":1}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":191329,"body":"Good idea @arpie - I forgot about the opposition! I'll do that too.","board":{"__ref":"Forum:board:general-treatment-and-surgery"},"conversation":{"__ref":"Conversation:conversation:191323"},"author":{"__typename":"User","login":"Dory65"},"postTime":"2021-03-20T22:00:01.000-07:00","kudosSumWeight":1}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":191327,"body":"Hi @arpie and all members of this forum,
I wrote to my local and federal members, and the state and federal health ministers. If we can all get behind this, it could make a difference. The general public just don't know what genomic testing is.
Dear ...,
I'm writing to you to lend support to a fellow member of the breast cancer survivor forum BCNA. If you can do so in any way at all, please represent all cancer patients in advocating for oncology genomic testing to be the FIRST test, not the last - to tailor better, more effective and less damaging treatments for all cancer diagnosis, including metastatic cancer.
The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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Testing should be the FIRST test, not the LAST!","id":"message:191323","revisionNum":1,"repliesCount":6,"author":{"__ref":"User:user:20667"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"conversation":{"__ref":"Conversation:conversation:191323"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:191323"},"body":"When we had our first meeting with Hubby's Onc, she was very keen for us to have Next Generation Sequencing done (in the USA) to see if there are any mutations within his tumours that may respond to specific medications (that may or may not be available in Australia.) In the USA, it is done pretty well routinely in a lot of the cancer centres - but many of the drugs used over there, have not been approved for use in Australia, so are not even allowed to be imported, even if you WANTED to try them as an option!
She said that eventually, getting this test done FIRST will be 'the norm' ..... but as of now - it is not 'readily available' to everyone, with out paying a fairly high price, in our case, it was $3000.
In the Sunday Telegraph this weekend, there was a 3 page article on women with metastatic breast cancers who are NOT able to access some life saving (or life prolonging) immunotherapy drugs on PBS, as they've not been approved for Breast Cancer - but have been for Lung cancer and Melanomas (eg Keytruda.). If you know anyone with a copy of the paper - it is well worth a read too.
There was a separate article on the Garvan Institute in Sydney who DO do genomic testing - and is an interesting read. (Sorry it is a bit fuzzy ..... but I hope you can read it.) They were conducting trials last year whereby they made the testing available either free or a nominal $350, which enabled a lot of patients to be tested, who otherwise would not have been able to afford it. The trial ended earlier this year. Our Onc had submitted some of her patients for it.
My husband's genomic tests came back showing 2 drugs may be helpful with his treatment that are currently in use in the USA - but sadly they are not approved in Australia, so we are unable to access them for his treatment. :(
IF the Gov comes to the party and makes this testing more available to cancer patients - it will be fantastic, as new Clinical Trials that should include BC patients - should spring up everywhere!
You can contact him on: d.thomas@garvan.org.au
I contacted him and this is part of his reply:
Omico has enabled more than 3,000 Australians with incurable cancers, and no other standard options, to access genomic screening, and about one in five of those to access matched therapy. We know from our data, and that being produced internationally, that this translates into clinical benefits, including longer life. But we have resources currently only for 2-4% of those who could benefit from screening. We know we have to change that.
We are trying to develop a private-public partnership between government and the pharmaceutical sector. We ask the government to provide genomic screening for all cancer patients with incurable disease, and we ask industry to bring more cancer trials of new drugs to Australia. In this way, we solve the major problem, which is not screening, it is treatment. This is no doubt something very clear to you. If we can bring not only the tests but also matched treatments, without causing people out of pocket expenses, we have a sustainable model for precision oncology for Australians today.
Despite being non-profit, Omico has worked very hard at developing industry relationships, primarily so we can develop new trials for our patients. Our experience has been overwhelmingly positive. This leads us to believe that we can create the PPP described above. We have developed and submitted a business proposal to the Federal government, based on economic modelling and discussions with industry. We hope that they will see that the PPP will allow the commonwealth to take the bold step to provide all Australians with genomic testing and matched therapy, without breaking the bank. Health and the economy are seen as polar opposites—but that isn’t necessarily the case. Our modelling indicates that we not only screen 80,000 Australians, and save almost 3,000 years of life for cancer patients, but we create 3,000 new jobs in the high tech sector, and inject $2.8B of value into the economy from foreign direct investment or saved health care costs.
","body@stringLength":"4760","rawBody":"When we had our first meeting with Hubby's Onc, she was very keen for us to have Next Generation Sequencing done (in the USA) to see if there are any mutations within his tumours that may respond to specific medications (that may or may not be available in Australia.) In the USA, it is done pretty well routinely in a lot of the cancer centres - but many of the drugs used over there, have not been approved for use in Australia, so are not even allowed to be imported, even if you WANTED to try them as an option!
She said that eventually, getting this test done FIRST will be 'the norm' ..... but as of now - it is not 'readily available' to everyone, with out paying a fairly high price, in our case, it was $3000.
In the Sunday Telegraph this weekend, there was a 3 page article on women with metastatic breast cancers who are NOT able to access some life saving (or life prolonging) immunotherapy drugs on PBS, as they've not been approved for Breast Cancer - but have been for Lung cancer and Melanomas (eg Keytruda.). If you know anyone with a copy of the paper - it is well worth a read too.
There was a separate article on the Garvan Institute in Sydney who DO do genomic testing - and is an interesting read. (Sorry it is a bit fuzzy ..... but I hope you can read it.) They were conducting trials last year whereby they made the testing available either free or a nominal $350, which enabled a lot of patients to be tested, who otherwise would not have been able to afford it. The trial ended earlier this year. Our Onc had submitted some of her patients for it.
My husband's genomic tests came back showing 2 drugs may be helpful with his treatment that are currently in use in the USA - but sadly they are not approved in Australia, so we are unable to access them for his treatment. :(
IF the Gov comes to the party and makes this testing more available to cancer patients - it will be fantastic, as new Clinical Trials that should include BC patients - should spring up everywhere!
You can contact him on: d.thomas@garvan.org.au
I contacted him and this is part of his reply:
Omico has enabled more than 3,000 Australians with incurable cancers, and no other standard options, to access genomic screening, and about one in five of those to access matched therapy. We know from our data, and that being produced internationally, that this translates into clinical benefits, including longer life. But we have resources currently only for 2-4% of those who could benefit from screening. We know we have to change that.
We are trying to develop a private-public partnership between government and the pharmaceutical sector. We ask the government to provide genomic screening for all cancer patients with incurable disease, and we ask industry to bring more cancer trials of new drugs to Australia. In this way, we solve the major problem, which is not screening, it is treatment. This is no doubt something very clear to you. If we can bring not only the tests but also matched treatments, without causing people out of pocket expenses, we have a sustainable model for precision oncology for Australians today.
Despite being non-profit, Omico has worked very hard at developing industry relationships, primarily so we can develop new trials for our patients. Our experience has been overwhelmingly positive. This leads us to believe that we can create the PPP described above. We have developed and submitted a business proposal to the Federal government, based on economic modelling and discussions with industry. We hope that they will see that the PPP will allow the commonwealth to take the bold step to provide all Australians with genomic testing and matched therapy, without breaking the bank. Health and the economy are seen as polar opposites—but that isn’t necessarily the case. Our modelling indicates that we not only screen 80,000 Australians, and save almost 3,000 years of life for cancer patients, but we create 3,000 new jobs in the high tech sector, and inject $2.8B of value into the economy from foreign direct investment or saved health care costs.
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Side Effects FEC-D Long term side effects or menopause?","conversation":{"__ref":"Conversation:conversation:262862"},"id":"message:262862","revisionNum":1,"uid":262862,"depth":0,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"author":{"__ref":"User:user:21236"},"metrics":{"__typename":"MessageMetrics","views":57},"postTime":"2025-04-04T05:41:04.762-07:00","lastPublishTime":"2025-04-04T05:41:04.762-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":" Hi all, its been several years since I posted on here. 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this topic","repliesTurnedOff.BLOG":"Comments are turned off for this topic","repliesTurnedOff.TKB":"Comments are turned off for this topic","repliesTurnedOff.IDEA":"Comments are turned off for this topic","repliesTurnedOff.OCCASION":"Comments are turned off for this topic","infoText":"Stop poking me!"},"localOverride":false},"CachedAsset:text:en_US-shared/client/components/common/QueryHandler-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/common/QueryHandler-1742938040000","value":{"title":"Query Handler"},"localOverride":false},"User:user:22343":{"__typename":"User","id":"user:22343","uid":22343,"login":"Dory65","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-12-01T21:08:53.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-3.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22343"},"ModerationData:moderation_data:191329":{"__typename":"ModerationData","id":"moderation_data:191329","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:191329":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22343"},"id":"message:191329","revisionNum":1,"uid":191329,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"parent":{"__ref":"ForumTopicMessage:message:191323"},"conversation":{"__ref":"Conversation:conversation:191323"},"subject":"Re: Genomic Testing should be the FIRST test, not the LAST!","moderationData":{"__ref":"ModerationData:moderation_data:191329"},"body":"Good idea @arpie - I forgot about the opposition! I'll do that too.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"67","kudosSumWeight":1,"repliesCount":0,"postTime":"2021-03-20T22:00:01.000-07:00","lastPublishTime":"2021-03-20T22:00:01.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:general-treatment-and-surgery/message:191323/message:191329","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"67","rawBody":"Good idea @arpie - I forgot about the opposition! I'll do that too.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:191329_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:191328":{"__typename":"ModerationData","id":"moderation_data:191328","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:191328":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:191328","revisionNum":1,"uid":191328,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"parent":{"__ref":"ForumTopicMessage:message:191323"},"conversation":{"__ref":"Conversation:conversation:191323"},"subject":"Re: Genomic Testing should be the FIRST test, not the LAST!","moderationData":{"__ref":"ModerationData:moderation_data:191328"},"body":"Thank you so much, @Dory65 - that is a great letter!
I shall send it to my local and federal ministers and both health ministers as well as the opposition, I reckon!
And I recommend EVERYONE on the forum do the same as this science IS AVAILABLE NOW, BUT IS BEING DENIED TO US!!.... so get your kids and siblings to send it in too. The more, the merrier!
@Giovanna_BCNA - could this one be stickied, please? I am not sure That everyone on the forum is aware of the very real benefits of Genomic Testing and the role it plays in determining the most efficient way of treatment of cancers ..... it could save their own lives!
IT IS IMPORTANT THAT EVERYONE UNDERSTANDS how Genomic Testing works and how it can help save lives (or prolong life) with individual meds that will target specific mutations in tumours.
‘Generic’ chemo (ie one type works for everyone with ’x’ cancer) DOESN’T actually suit everybody ..... and in fact, it could make them even sicker!
At this point in time, we can’t access the potentially life saving meds for my husband’s cancer .... but I hope that in the near future, that YOU CAN, specially if you go Metastatic (which I hope you don’t!) take care, stay safe xx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2021-03-20T19:36:54.000-07:00","lastPublishTime":"2021-03-20T19:36:54.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:general-treatment-and-surgery/message:191323/message:191328","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"1308","rawBody":"Thank you so much, @Dory65 - that is a great letter!
I shall send it to my local and federal ministers and both health ministers as well as the opposition, I reckon!
And I recommend EVERYONE on the forum do the same as this science IS AVAILABLE NOW, BUT IS BEING DENIED TO US!!.... so get your kids and siblings to send it in too. The more, the merrier!
@Giovanna_BCNA - could this one be stickied, please? I am not sure That everyone on the forum is aware of the very real benefits of Genomic Testing and the role it plays in determining the most efficient way of treatment of cancers ..... it could save their own lives!
IT IS IMPORTANT THAT EVERYONE UNDERSTANDS how Genomic Testing works and how it can help save lives (or prolong life) with individual meds that will target specific mutations in tumours.
‘Generic’ chemo (ie one type works for everyone with ’x’ cancer) DOESN’T actually suit everybody ..... and in fact, it could make them even sicker!
At this point in time, we can’t access the potentially life saving meds for my husband’s cancer .... but I hope that in the near future, that YOU CAN, specially if you go Metastatic (which I hope you don’t!) take care, stay safe xx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:191328_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:191327":{"__typename":"ModerationData","id":"moderation_data:191327","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:191327":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22343"},"id":"message:191327","revisionNum":1,"uid":191327,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"parent":{"__ref":"ForumTopicMessage:message:191323"},"conversation":{"__ref":"Conversation:conversation:191323"},"subject":"Re: Genomic Testing should be the FIRST test, not the LAST!","moderationData":{"__ref":"ModerationData:moderation_data:191327"},"body":"Hi @arpie and all members of this forum,
I wrote to my local and federal members, and the state and federal health ministers. If we can all get behind this, it could make a difference. The general public just don't know what genomic testing is.
Dear ...,
I'm writing to you to lend support to a fellow member of the breast cancer survivor forum BCNA. If you can do so in any way at all, please represent all cancer patients in advocating for oncology genomic testing to be the FIRST test, not the last - to tailor better, more effective and less damaging treatments for all cancer diagnosis, including metastatic cancer.
Australia is not keeping up with best practice oncology. Many countries support public health system genomic testing.
Please help in any way you can.
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2021-03-20T14:00:47.000-07:00","lastPublishTime":"2021-03-20T14:00:47.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:general-treatment-and-surgery/message:191323/message:191327","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"2094","rawBody":"Hi @arpie and all members of this forum,
I wrote to my local and federal members, and the state and federal health ministers. If we can all get behind this, it could make a difference. The general public just don't know what genomic testing is.
Dear ...,
I'm writing to you to lend support to a fellow member of the breast cancer survivor forum BCNA. If you can do so in any way at all, please represent all cancer patients in advocating for oncology genomic testing to be the FIRST test, not the last - to tailor better, more effective and less damaging treatments for all cancer diagnosis, including metastatic cancer.
Australia is not keeping up with best practice oncology. Many countries support public health system genomic testing.
Please help in any way you can.
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:191327_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:191326":{"__typename":"ModerationData","id":"moderation_data:191326","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:191326":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22343"},"id":"message:191326","revisionNum":1,"uid":191326,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"parent":{"__ref":"ForumTopicMessage:message:191323"},"conversation":{"__ref":"Conversation:conversation:191323"},"subject":"Re: Genomic Testing should be the FIRST test, not the LAST!","moderationData":{"__ref":"ModerationData:moderation_data:191326"},"body":"
Genomics Health Futures Mission
The Genomics Health Futures Mission will invest $500 million over 10 years in genomic research. It will improve testing and diagnosis for many diseases, help personalise treatment options to better target and improve health outcomes, and reduce unnecessary interventions and health costs.https://www.health.gov.au/initiatives-and-programs/genomics-health-futures-mission.
Hi @@arpie,
I found the above as I was planning to write the the relevant ministers. It seems promising. Perhaps your husband could benefit if there are related trials. Australia needs to pull up its socks in best practice oncology!!!","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2021-03-20T13:42:15.000-07:00","lastPublishTime":"2021-03-20T13:42:15.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:general-treatment-and-surgery/message:191323/message:191326","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"895","rawBody":"
Genomics Health Futures Mission
The Genomics Health Futures Mission will invest $500 million over 10 years in genomic research. It will improve testing and diagnosis for many diseases, help personalise treatment options to better target and improve health outcomes, and reduce unnecessary interventions and health costs.https://www.health.gov.au/initiatives-and-programs/genomics-health-futures-mission.
Hi @@arpie,
I found the above as I was planning to write the the relevant ministers. It seems promising. Perhaps your husband could benefit if there are related trials. Australia needs to pull up its socks in best practice oncology!!!","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:191326_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:191325":{"__typename":"ModerationData","id":"moderation_data:191325","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:191325":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:191325","revisionNum":1,"uid":191325,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"parent":{"__ref":"ForumTopicMessage:message:191323"},"conversation":{"__ref":"Conversation:conversation:191323"},"subject":"Re: Genomic Testing should be the FIRST test, not the LAST!","moderationData":{"__ref":"ModerationData:moderation_data:191325"},"body":"Thanks @Dory65
I guess by contacting your local and federal members and the relevant Health Ministers .... and asking them to support any info that may help get the Genomic Testing available and then following overseas trends in treatments of metastatic disease after proven success from trials ....
I guess by contacting your local and federal members and the relevant Health Ministers .... and asking them to support any info that may help get the Genomic Testing available and then following overseas trends in treatments of metastatic disease after proven success from trials ....
thank you xx
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:191325_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:191324":{"__typename":"ModerationData","id":"moderation_data:191324","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:191324":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22343"},"id":"message:191324","revisionNum":1,"uid":191324,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"parent":{"__ref":"ForumTopicMessage:message:191323"},"conversation":{"__ref":"Conversation:conversation:191323"},"subject":"Re: Genomic Testing should be the FIRST test, not the LAST!","moderationData":{"__ref":"ModerationData:moderation_data:191324"},"body":"Hi @arpie, Is there anything/anyone we can write to or email to add to the voices asking for Genomic Testing and the drugs not available here? I'm sorry you and your hubby are having a rough time of it. L x
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