Genetics Appointment
I have an appointment to see a genetic oncologist type person tomorrow. The generations in my family are all over the place (some of my first cousins were older than my parents) and I don't know much...
Forum Discussion
Hi @melclarity
My genetic testing was done through the Austin and they said that all records of a cancer diagnosis are registered and that this is a legal requirement. Because my parents are both deceased and I am next of kin there was no problem with getting the information. Neither of my parents were ever treated at the Alfred so they had to have been able to get the information elsewhere. I’m currently also working with the genetics clinic at the Royal Melbourne as my sister has been treated there for heart issues along with several other family members and they are looking into the connection with my heart issues( chemo induced cardiomyopathy). They have no record on my mum so have sent me an information release permission slip today so that they can request my mums relevant medical records from Epworth and Knox hospitals
Interestingly, the Austin also told me that there are several cancers that they look at in families including prostrate and some lymphomas I think. All I needed to do was give them the family tree with the names of family members( aunts uncles grandparents etc) and which ones I thought may have had cancer. They researched the rest. The only family members that they gave me details of were my parents, even though I know several other family members had cancer.
Im sorry that you weren’t able to get the information you needed. Maybe the Cancer Council might have a better idea about how you might be able to get your Mum’s records.
My genetic testing was done through the Austin and they said that all records of a cancer diagnosis are registered and that this is a legal requirement. Because my parents are both deceased and I am next of kin there was no problem with getting the information. Neither of my parents were ever treated at the Alfred so they had to have been able to get the information elsewhere. I’m currently also working with the genetics clinic at the Royal Melbourne as my sister has been treated there for heart issues along with several other family members and they are looking into the connection with my heart issues( chemo induced cardiomyopathy). They have no record on my mum so have sent me an information release permission slip today so that they can request my mums relevant medical records from Epworth and Knox hospitals
Interestingly, the Austin also told me that there are several cancers that they look at in families including prostrate and some lymphomas I think. All I needed to do was give them the family tree with the names of family members( aunts uncles grandparents etc) and which ones I thought may have had cancer. They researched the rest. The only family members that they gave me details of were my parents, even though I know several other family members had cancer.
Im sorry that you weren’t able to get the information you needed. Maybe the Cancer Council might have a better idea about how you might be able to get your Mum’s records.