Hi Louise.
I was glad to here you persisted in your genetic testing and were able to make an informed decision to have your surgery.
I am a little worried now that I allowed my breast surgeon to talk me out of having genetic testing. I had one fraternal aunt with breast cancer and my mother's fraternal twin died of ovarian cancer at 64. I have since found out that another fraternal aunt had breast cancer.
I will be seeing my surgeon next week and will persist with testing. Only regret it will be too late as I had an unilateral DIEP in February 2015.
I had a high grade DCIS and 2 prior wide excisions before having the mastectomy. The surgeon was insistent that I should have the mastectomy ASAP and I had little time to decide on a double masrtectomy.
I do realise that I could have had a mastectomy and immediate reconstruction on the unaffected breast but my DIEP was organised 5 weeks after my mastectomy and because my expander was extremely uncomfortable and enlarged with a seroma I had the DIEP as soon as I could and was extremely happy with the result.
My only fear now is that I may test positive tp BRCA gene. My girlfriend went to an Ovarian week afternoon tea and told me a guest speaker said that any one with a family history of ovarian ca ( even secondary relatives ) should be tested for the gene.
But thank you for your input. The only positive for me at this stage was that the histology from my mastectomy was that my breast tissue was normal.
Ro xx
'