Forum Discussion
LMK74
9 years agoMember
First AC Chemo
Tuesday morning was my first ac chemo. I was absolutely so scared that as soon as that gross red shit was going in tears were rolling down my face and I just couldn't stop. My nurse was wonderful as they all are.
One hour before the chemo they had me take and emand capsule. The pre meds were steroids and something called aloxi.
My oncologist have me steroids to take home 4mg tablets. This is how she said to take them. Wednesday morning one tablet. Thursday morning one tablet. Friday morning half a tablet. Saturday morning half a tablet. Anyone else taken them this way?. She said patients find this better as it doesn't disturb sleep so much.
Yesterday was day one after chemo. I stayed in bed all day feeling heavy all over and exhausted. No nausea so far touch wood so haven't yet needed anti nausea meds. Not sure what today will bring. Just feeling scared like i'm waiting for something bad to happen. If I've had no nausea so far is this a good sign or is delayed nausea still possible.
One hour before the chemo they had me take and emand capsule. The pre meds were steroids and something called aloxi.
My oncologist have me steroids to take home 4mg tablets. This is how she said to take them. Wednesday morning one tablet. Thursday morning one tablet. Friday morning half a tablet. Saturday morning half a tablet. Anyone else taken them this way?. She said patients find this better as it doesn't disturb sleep so much.
Yesterday was day one after chemo. I stayed in bed all day feeling heavy all over and exhausted. No nausea so far touch wood so haven't yet needed anti nausea meds. Not sure what today will bring. Just feeling scared like i'm waiting for something bad to happen. If I've had no nausea so far is this a good sign or is delayed nausea still possible.
24 Replies
- socodaMemberHey Lisa @LMK74, I have no idea whether this works as I can't speak from experience but have been told try fruit tingles or lolly red frogs
- LMK74MemberJenv, I'm so sorry this is your second time around. I hope the chemo isn't too bad for you. Yes it is the fear of the unknown with all of it. Sending you strength to get through this battle.
Hugs Lisa x
Primek, so far I'm not nauseous but the taste in my mouth is making me gag on everything. Yesterday I puked not because I felt sick, it is the taste of everything. Can't stomach any food. Not sure what to do. Just have to ride it out somehow. - primekMemberGood the nausea isn't an issue. I was mainly queasy. I did need steroids for 4 days which greatly improved the nausea. Hope it continues for you. (I unfortunately needed the extra steroids, stemitil and ondasetron ) but that solved it.
- JenvMemberHi, i had my first chemo hit yesterday (10th may).... but this is my second time round after 17 years so lucky me, now I'm stage 4.
I new what to expect! It is daunting...its the unknown and everyone is different in how they handle it and or react. I'm waiting for side effects to happen but so far so good feeling fine, they say may get tired over w'end, keep waiting for nausea but nothing. Hope stays that way.
I have to take the steroids dexamethesone 4mg
For 2 days 1 breakfast 1 lunch
Weekend 1 at breakfast sat and sun
The mon for 1 week each day a half tablet then stop
They say if you get a good therapeutic quality magnesium it can help withg the legs etc. - LMK74MemberUnicornkisses, sorry you are feeling Crap too. The last few weeks of taxol my legs were stiff and achy and still are. It's like they feel 100yrs old lol and my knees when I bend down crack big time. The hand and foot syndrome I have is still bothering me, hot burning pain. Not sure how long it lasts but hope you don't get much in the way of neuropathy.
Lisa. - UnicornkissesMemberLMK74 I think it is a combination. I had the Neulasta for the last two FEC, and yes, it did make me ache, but not as badly, so I think it is the taxol making it worse. I do take the Clarytyne thanks to information on this site, and it makes it bearable with Panadol.
Still, that is one more chemo done, and we are both on the finishing stretch! - LMK74MemberUnicornkisses, thanks. Is the nuelasta making you ache all over?. Or the taxol. It all sucks big time. People say claryntine can help with bone pain.
- UnicornkissesMemberLMK74 I found the Aloxi seemed to last for a few days after chemo, then the slight nausea crept in. I had finished the steroids then too, which also keeps the nausea at bay. It wasn't bad, but I took the anti nausea at night before bed which lasted me most of the next day, and sometimes I would need more in the afternoon.
I find my mood drops to misery the second and third day after stopping the steroids, so that could be affecting you too. It then seems to even out a bit.
I think the first dose of a new chemo is the worst, then I seem to manage the side effects a bit better, which makes me feel less miserable and fed up with myself.
The lack of appetite and complete lack of taste is a challenge, sucking mints helps for me.
Maybe try and do something nice for yourself each day to get you through the toughest days until you realise you are starting to feel better.
I am going through the first Taxol, I had it on Monday, with a Neulasta injection on Tuesday.
I managed to get through the FEC and hoped this would be better.
I finished the steroids in Tuesday morning and last night the misery hit, but at least I know what is causing it this time, so I am going to drag myself across to the shopping centre to buy a pink bun from Bakers Delite for afternoon tea.
I can walk there so maybe it will help the knee, hip and shin pain from the drugs. And it will get me out in the sun for a little while.
I guess the bun won't taste like anything much though!
So I can relate to how you are feeling, it is a hard slog sometimes just to get through the day feeling reasonably human.
For me after FEC, days 7-8 I realised things were feeling better, and by the third week I was feeling fantastic. Hoping you do too. - LMK74MemberSparkles, thanks I will try to keep smiling.
You'll be finished in no time. I hope radiation goes well. - SparklesMemberYou are right - it can feel very lonely. That's why our sisters on this site are so important - there & doing that so everyone knows & gets it. My rads start on 30 May - can't start soon enough as it is another step in the journey. Keep smiling xx