Forum Discussion

samouatt's avatar
samouatt
Member
14 years ago

Finally

Well I hate to say it but services for partners has been sadly lacking in my experience.  We have our own journey, that is often not acknowledged which is just as life changing as those who are fighting this disease.  I don't want to be told what someone who has cancer thinks I should/should not do, nor do I want to get the usual oh well most men can't hack it and leave tripe that I hear in supposed carers forums because it just isn't true.

 Being a carer is completely different and needs to acknowledged as such.  So I'm behind this 100%.  More than anything we need a voice and somewhere to share our grief too.

Thanks for getting this going Di

Simon

2 Replies

  • It is everyone together who is doing great work Dean.  Right now we just need to spread the word, agitate for recognition and get something useful done to help others.  Most of all I'd like to know that others just starting out on their carers journey have somewhere to turn to for support and the odd bit of information.

    Wish you and your partner luck in her fight

     

    Simon

  • Hi Simon!  Good on you for jumping in so quickly (you get the 'first member' gong :). 

    Feel free to promote the group to anyone else you think might be interested -- all partners are welcome.

    ~Di