Forum Discussion

Louisadawdy's avatar
10 years ago

Feeling stupid

Hi ladies,

i haven't been on for a while and I will get to the stupid reason why in a moment. Yesterday I saw my amazing surgeon who went through my results of op to remove 2 little lumps. One was grade 1 ductile carcinoma 1.3mm and the other was grade 3 1.5mm. Because she told me all the margins and 3 nodes were clear I was totally blown away when she told me the next step was to see the oncologist. I feel so stupid and nieve to think that I would breeze into her rooms and she would say all good, back to work. I have all the info for BCNA still sitting un-opened coz I honestly thought I wouldn't need it. I have cried and cried last night and for one reason.....I don't want to lose my hair. Are these thoughts normal on my cancer beginning journey xx

  • Hey Louisa!

    I am still waiting for my full results after my lumpectomy 13/1/16, my nodes came back positive so they went too. Although I am still recovering from my surgery, i have thought and thought about impending treatment! My cancer biopsy results only said Invasive Ductal Carcinoma and that its hormone receptive. I only have an indication of how big it was because the surgeon explained it as large and nasty, I may need further surgery, but  I am also expecting chemo..i will definitely have radiation and hormone therapies too.

    I think I am more afraid of the treatment phase than the actual surgery. I am anxious about losing my hair, anxious that I may lose more of my 14HH size boobs, but you know what your hair will grow back and as far as my boobs go, well i can get false ones (maybe a few sizes smaller!)

    The hardest thing to grasp is how you will feel throughout this experience, you just don't know until you get there. I think the initial shock, the information overload, that fact YOU actually have cancer and how will you deal with it effects your way of thinking in an astounding way. I think your brain has a natural way of "numbing" your reaction. It's like a preparation to make you strong and sane enough to get through it....The next days, weeks, months will blur by I imagine, expect that there will be good days and there will be bad, low days and deal with them as they come. Anticipation plays havoc with the mind. Try to meditate ....and keep a positive attitude! remember to breathe, I mean really breathe, when we are under stress, we take shorter shallow breaths..breath in courage, exhale fear ..breeeeathe! Write everything down, ask a million questions, no matter how silly you think they are!

    Good luck with everything and remember we are behind you every step!

    Love and light

    - Tracy

    Stay Strong|Breathe|Believe

  • Im sorry you are having to start out on this journey & yes, its normal, I felt the same, I was fine with everything up until I heard the words - you will lose you hair but it will grow back!!..

    But you know, losing your hair isn't that bad.... Do you know how easy it makes life to just get up in the morning & put your hair on instead of having to wash & dry it?? & I dont have to shave my legs or under my arms or have bikini waxes.....

  • Hi Angie,

    the smallest lump is DCIS grade 1 but the other one is HER positive grade 3. I think that's why a visit to the oncologist is needed. I just wish I had read more info that was sitting on my desk at home. What is the cap thing

    cheers for taking the time to reply to me

    Louisa x

     

  • I felt totally the same as similar to you I had a 9mm stage 1 but was HER positive and hormone positive too and hence why chemo was suggested. I thought I would need radiotherapy only after my surgery and I can totally relate to your shock.  did they explain the reasoning for the chemo? I doubt you would need anything heavy duty for something of your size?

    Im on weekly Taxol and using the cold caps to retain my hair . Do talk to your oncologist about the caps, mine was very pro for them, even had pictures on his phone of women who used them and showing me the results . I've had 3 taxols and 3 weeks of caps so within the next week I should get a feel for the effectiveness. Retaining Hair was so important to me hence even though they are uncomfortable I'm happy to tolerate them.

    one step at a time , it's hard to take it all in, hopefully the oncologist will explain more and the reasoning etc. totally normal what your feeling.

    take care

    angie