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frustrated!","id":"message:120737","revisionNum":1,"repliesCount":20,"author":{"__ref":"User:user:21503"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"conversation":{"__ref":"Conversation:conversation:120737"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:120737"},"body@stripHtml({\"truncateLength\":200})":"Hi lovely people and Happy New Year! I was diagnosed on the 8th November 2018 and had the usual gamut of tests before seeing my surgeon on the 21st November where the intitial plan was lumpectomy foll...","body@stringLength":"1681","rawBody":"Hi lovely people and Happy New Year! I was diagnosed on the 8th November 2018 and had the usual gamut of tests before seeing my surgeon on the 21st November where the intitial plan was lumpectomy followed by rads as it was thought no node involvement. My surgeon requested I have an MRI so she could map surgery. MRI showed the mass to be bigger than the other imaging so plan changed to mastectomy. Surgery was on the 6th December and my follow up appointment on the 21st December. Pathology results were the same as biopsy results in November. DCIS/invasive ductal in situ but there were nodes involved. I had 16 removed and 3 were cancerous. So my frustration lies in the fact that the surgeon said she would do referrals for oncology and rads as she thought the plan would be for both as there was nodal involvement. I know that we are in the midst of the holiday season so things slow down and shut down. My surgeon went on holidays on the 22nd December and is back in February. I have heard from radiation oncology and have a consult appointment on the 28th January. I haven't heard from chemo oncology. How would I go about chasing this up in the event I don't hear from them in the next week or two? Would I have to wait for my surgeon to return as I have no idea who I have been referred to as she was going to talk to two.i managed to take a chill pill over xmas/new year but I'm now getting twitchy as I want to be able to be able to see my way forward and I feel like I'm in limbo land.I assume that new patients are triaged and maybe I'm sitting at the bottom of the list and they've yet to get to me. thanks for listening and any advice gratefully received ","kudosSumWeight":0,"postTime":"2019-01-02T00:02:27.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:coping","text":"coping","time":"2025-03-25T05:01:39.590-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:treatment","text":"treatment","time":"2025-03-25T05:02:03.081-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:120737_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":312},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hi lovely people and Happy New Year! I was diagnosed on the 8th November 2018 and had the usual gamut of tests before seeing my surgeon on the 21st November where the intitial plan was lumpectomy followed by rads as it was thought no node involvement. My surgeon requested I have an MRI so she could map surgery. MRI showed the mass to be bigger than the other imaging so plan changed to mastectomy. Surgery was on the 6th December and my follow up appointment on the 21st December. Pathology results were the same as biopsy results in November. DCIS/invasive ductal in situ but there were nodes involved. I had 16 removed and 3 were cancerous. So my frustration lies in the fact that the surgeon said she would do referrals for oncology and rads as she thought the plan would be for both as there was nodal involvement. I know that we are in the midst of the holiday season so things slow down and shut down. My surgeon went on holidays on the 22nd December and is back in February. I have heard from radiation oncology and have a consult appointment on the 28th January. I haven't heard from chemo oncology. How would I go about chasing this up in the event I don't hear from them in the next week or two? Would I have to wait for my surgeon to return as I have no idea who I have been referred to as she was going to talk to two.i managed to take a chill pill over xmas/new year but I'm now getting twitchy as I want to be able to be able to see my way forward and I feel like I'm in limbo land.I assume that new patients are triaged and maybe I'm sitting at the bottom of the list and they've yet to get to me. thanks for listening and any advice gratefully received "},"Conversation:conversation:120737":{"__typename":"Conversation","id":"conversation:120737","solved":false,"topic":{"__ref":"ForumTopicMessage:message:120737"},"lastPostingActivityTime":"2019-01-04T03:10:17.000-08:00","lastPostTime":"2019-01-04T03:10:17.000-08:00","unreadReplyCount":20,"isSubscribed":false},"ModerationData:moderation_data:120737":{"__typename":"ModerationData","id":"moderation_data:120737","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:120737_1":{"__typename":"Revision","id":"revision:120737_1","lastEditTime":"2019-01-02T00:02:27.000-08:00"},"ForumReplyMessage:message:120746":{"__typename":"ForumReplyMessage","id":"message:120746","conversation":{"__ref":"Conversation:conversation:120737"},"author":{"__ref":"User:user:20569"},"revisionNum":1,"uid":120746,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"subject":"Re: Feeling frustrated!","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:120746"},"parent":{"__ref":"ForumTopicMessage:message:120737"},"body":"It would be lovely to have one of these BC nurses who seem to work wonders but if like me, you don't, ring your surgeon's office to find out what's going on (even if it's just to find out who you've been referred to so you can ring them) and if you get no joy, talk to your GP.
I had my second surgery on 8/1 and the path report from a few days prior to that was what indicated that I would need chemo. My first treatment was scheduled for 5/2 which was the earliest that it could be done after surgery. As far as I know, this was to ensure healing rather than convenience for the doctors. In fact, the onc squeezed me in for the first consultation before he went on holiday so that there would be no delay when I got the all clear to go ahead.","body@stringLength":"773","rawBody":"It would be lovely to have one of these BC nurses who seem to work wonders but if like me, you don't, ring your surgeon's office to find out what's going on (even if it's just to find out who you've been referred to so you can ring them) and if you get no joy, talk to your GP.
I had my second surgery on 8/1 and the path report from a few days prior to that was what indicated that I would need chemo. My first treatment was scheduled for 5/2 which was the earliest that it could be done after surgery. As far as I know, this was to ensure healing rather than convenience for the doctors. In fact, the onc squeezed me in for the first consultation before he went on holiday so that there would be no delay when I got the all clear to go ahead.","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-01-02T19:15:01.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:120746_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1744167669796":{"__typename":"CachedAsset","id":"theme:customTheme1-1744167669796","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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