Forum Discussion

Miffy1975's avatar
Miffy1975
Member
3 years ago

Feeling flat 6 months in…..

Hello. My first post! Thanks to everyone for sharing their stories - it helps enormously. I am 46 and was diagnosed with BC in January (HER2 positive, lobular with lymph node involvement). Completed 5 months of chemo and three weeks ago I had a double mastectomy and reconstructive surgery. 🙌 Unfortunately the pathology results post surgery showed residual cancer both in the breast (to a lesser extent) and in the 7 lymph nodes the surgeon removed. Ho hum. Based on this my oncologist has recommended me taking KADCYLA, a combined chemo / herceptin infusion. This will commence once radiation finishes in 4 weeks time. This was not in the plan. I thought the chemo was over. Arghhhhh. I have been surprisingly calm throughout the journey so far but this is a definite curve ball. I think hearing words like improving your prognosis has made me feel vulnerable and nervous. Has anyone else been at this point or taken KADCYLA? How do the side affects compare to AC or Paclitaxel? In my mind I was further along the journey than I actually am. Have been feeling a bit deflated at times - a far cry from the positive person I’m known to be. 

  • Ah, thanks for your message. I guess we just have to take what’s needed to hopefully keep the dreaded thing at arms length. x 
  • Hi there
    I have not taken KADCYLA but am
    on hormone suppressing drugs  for at least 5 years.
    I just wanted to say that I relate to your feelings that life is a bitch but we do what we can based on the best medical advice to avoid the ultimate bad outcome of this shitfest they call breast cancer.
    Vent all you like in here - we all get it one way or another.
    I hope you get peace.
    Take care.🌺