Forum Discussion
LibbyA
3 years agoMember
Feeling a failure
Does anyone know if there is a phone consult available for breast cancer mental health? I had two lumpectomies and axillary clearance due to cancer in one node in early 2019. Then rads. Then hormon...
Keeping_positiv
3 years agoMember
Please don't beat yourself up! I also had severe side effects and stopped taking them at the 4 year mark. My understanding also is that the most benefit in my case was in the first three years of taking an AI. I nearly burnt my house down because my memory got so bad I forgot I left the griller on in the kitchen and went outside. I also could not toilet myself properly because of the stiffness in my elbows. I would mix up my thyroid med (my thyroid packed in after the chemo, radio and one year on AIs) and AI and take the wrong one, and I also lost balance a couple of times and fell over in the street. I probably would have been dead by now if I continued on with an AI.
Will my cancer return? I don't know! What I do know is that I have a better chance of staying alive not remaining on an AI that was causing me so much pain and not to mention the insomnia I was going through. I ended up seeing a psychologist not knowing whether I was "arthur or martha".
For what it is worth I also started to feel better once off the AIs, and wondered should I try them again. The oncologist said no! After what I went through I know I made the best decision to call enough is enough, with the blessing of my oncology team. Besides, even though those that remain on an AI for 5 to 10 years, can still get a recurrence. Give yourself some grace and love yourself, because you know how much you went through, through no fault of your own. Take care and enjoy your life. xx
Will my cancer return? I don't know! What I do know is that I have a better chance of staying alive not remaining on an AI that was causing me so much pain and not to mention the insomnia I was going through. I ended up seeing a psychologist not knowing whether I was "arthur or martha".
For what it is worth I also started to feel better once off the AIs, and wondered should I try them again. The oncologist said no! After what I went through I know I made the best decision to call enough is enough, with the blessing of my oncology team. Besides, even though those that remain on an AI for 5 to 10 years, can still get a recurrence. Give yourself some grace and love yourself, because you know how much you went through, through no fault of your own. Take care and enjoy your life. xx