Forum Discussion
Unicornkisses
9 years agoMember
FEC and headaches / migraine.
1st infusion of FEC yesterday.
just into the bag they had to stop and give me clatytyne and Panadol as I started to space out and get tingly. They slowed the drip down but after about half way through I started to feel that my ears and side of my head were swelling up and the headache started. They flushed through with saline then started the drop again. Fortunately the pharmasist was there speaking with me at the time.
last night was terrible, migraine type pain all over my head, cold shivers, super sensitive eyes, very sensitive ears that feel a bit swollen underneath. Tried Panadeine forte, then ended up ringing the hospital and they said I could take an Endone.
It took the edge off, so I got some sleep, but still have medium severe head with sensitive eyes and ears.
i am taking the steroids in the morning, and one clatytyne with Panadol.
Has anyone else had this problem?
Any other things to suggest?
I suffer from migraine and cannot take my relievers during the week around chemo infusions.
I am trying to drink heaps to flush the toxins out.
I just want to knock myself out and get away from this pain.
just into the bag they had to stop and give me clatytyne and Panadol as I started to space out and get tingly. They slowed the drip down but after about half way through I started to feel that my ears and side of my head were swelling up and the headache started. They flushed through with saline then started the drop again. Fortunately the pharmasist was there speaking with me at the time.
last night was terrible, migraine type pain all over my head, cold shivers, super sensitive eyes, very sensitive ears that feel a bit swollen underneath. Tried Panadeine forte, then ended up ringing the hospital and they said I could take an Endone.
It took the edge off, so I got some sleep, but still have medium severe head with sensitive eyes and ears.
i am taking the steroids in the morning, and one clatytyne with Panadol.
Has anyone else had this problem?
Any other things to suggest?
I suffer from migraine and cannot take my relievers during the week around chemo infusions.
I am trying to drink heaps to flush the toxins out.
I just want to knock myself out and get away from this pain.
23 Replies
- UnicornkissesMemberYes, Kath, that describes it exactly. Yesterday I frantically ate to try and soothe the hunger and ease the discomfort In my gut, but it didn't work, I just got more and more bloated and the pain was awful. Today I took the Nexium and will follow with more if needed. So far so good. It doesn't help that I had Irritable Bowel Syndrome before this all started.
Todays Wellness talk is Pain management. Have a headache, but I am going!
First bloodtests today too 10 days post first infusion, I wonder what that will hold? - primekMemberI needed nexium twice daily and had back up dissolvable zantac. But it was just awful. Initially lived on cheese toasties. Being hungry made it worse but eating didn't resolve issue as then the bloating started. It was awful. I tried no bread. Almond milk instead of milk. Couldn't stand veggies ...blerk...they became bitter. Nothing helped. I just ate what I fancied and could tolerate. Hope things improve.
- melclarityMember@Unicornkisses yes you pick up week 2-3 and then back down at next infusion is how it works. I can remember yes the gut issues and I still have them a little now 14 months post chemo. Nexium I found was fantastic but for heartburn/reflux it was the only thing that worked. I agree about the cravings like Zoffiel said, to do with lack of nutrients. I couldnt eat really at all or hydrate was a problem, just felt constantly sick. Yeah anti nausea meds didnt work for me either and you'll find too that the Steroids make you shaky. So you should settle down a little now til the next infusion. I'd imagine your hair will start to fall within the next week too. It starts to feel weird as you say, my scalp was prickly and sore and that was the beginning. I remember too same thing nothing helped no food, drink nothing to ease the nausea or the overall horrible feeling, just had to ride it out. Hugs Melinda xo
- ZoffielMemberPS. The starving thing could be because you are not absorbing all the nutrients you need. That's my onc's take on things but I view it as more anecdotal than scientific. I was down to tolerating sugar and basic starch, no wonder I was hungry.
- ZoffielMemberThe gut thing was the most difficult for me. Everything else made sense but the pain in my small intestine was, and remains, a problem. I'm hoping it goes away and takes my inability to digest stuff with it.
- UnicornkissesMemberWell, I am into week two after Chemo. Thank goodness the headaches have eased.
The scalp is tender and prickly though and washing my hair last night was not the usual pleasure, it did not feel nice at all. So I guess it won't be long before even this short pixie do starts to leave me.
What on earth is with these food cravings though?
Today it is Chinese chicken soup. And the last few weeks it has been difficult to force down anything solid, this week I am making up for it. I am constantly starving!
My mouth and gums feel like sandpaper, but not sore at the moment.
Metallic taste there most of the time, but can still manage a cup of tea if I put honey in it.
The body shaking that made me felt like I was moving constantly has lessened, so my hands only shake a little,mostly when I am tired.
The gut issues have me puzzled though,
The constipation that was horrendous last week resolved with the Movicol and fruit juice mixes, but I am still left with the strange pain/discomfort across the fold where my belly button is. It is pretty constant.
Antinausea meds don't seem to make any difference.
Nexium didn't seem to help, though it helped the stomach pain last week.
Eating doesn't seem to help, though some foods make it worse.
I have heard others say their gut became very sensitive, perhaps this is similar.
I am not even really sure how to describe it to the hospital if I ring up to enquire.
So far week two is looking better, a bit more energy, even the ironing is slowly getting done. - Molly001MemberThanks Mel!
- melclarityMember@Unicornkisses and @Molly001 thinking of you girls!!!! Its crap no two ways about it, I was allergic to maxolon was weird I didnt realise but my Oncologist nurse noticed uuuugh. Anti nausea meds dont work. Strangely the only thing that helped me get through that part was Ativan which they gave before each infusion. So I'd use that and try sleep as much as i could but still felt like when I woke that I had a massive hangover grrrr. Not nice, so 1 day only at a time ladies, dont look a week or more ahead, keep it small steps and keep communicating everything so you can stay on top of things as they occur and help. Salt water rinse daily is a must for ulcers that come about 4 days after, if severe Kennalog cortisone paste is amazing! Hugs ladies Melinda xo
- Molly001MemberSounds like you're doung great, Jennie all things considered. I'm pretty good today apart from a constant visit from my good old friend nausea. Had horrendous morning sickness both pregnancies so not surprised. Dreading tomorrow when all the good meds wear off and I'm just left with maxalon, which I've always found pretty useless. Will see what comes & get onto my support quickly if needed. Looking forward to injecting myself like a hole in the head too. Just greatful to feel pretty good today. Let's see what tomorrow brings & keep looking ahead. Chin up.
- UnicornkissesMemberGood luck with your Chemo too, Molly001.
I hope your sideeffects are manageable and don't get you down too much.
I am in day 4 post infusion, still in the stomach ache stage. Nexium helped the upper stomach pain so I think I will stay on that for a while.
I am waiting for the abdomen pain to ease, trying all the natural methods to get things moving there as don't want to start an avalanche.
This morning I entered the sore dry skin stage. Dry mouth with metallic taste, but not too bad.
The mouthwash and Biotene dry mouth spray and mints are helping there.
The hospital gave me a Moogoo Chemo pack with body wash, face and body cream, lip salve and deodorant in it. Best stuff ever. I have Rosacea, so super sensitive skin on my face and this is lovely, took the redness right out.
I will be getting more of that for the duration.
I am also slathering myself in sorbolene, gosh the body care ritual takes some time out of the day!
My sister is coming up from Sydney and taking me out for tea and cake tomorrow afternoon, then to the hairdresser for the new pixie do.
So the Avatar pic hairdo will be all gone. Pity, it had only just started to curl up like that after having mostly dead straight hair all my life.
The fatigue is really taking its toll today too. I get a little burst of energy to hang out some washing then back to sitting down for a while. I am finding this a bit hard to take as I am not generally a sitter! But the Onc did warn me that this chemo cocktail was known for that, so I guess I had better get used to it.
I have a TaiChi class in the morning, hoping that helps the energy levels a bit.