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annie2's avatar
annie2
Member
14 years ago

exemestane

Ive just started to take the drug exemestane instead of tamoxifin.This is a clinical trial that im doing. was hoping some of you may be on this same drug. just wanting to know if you are having many side affects and if they settle down.                    My hot flushes have increased and im having joint and bone pain,cant sleep(which is nothing new),and very lethargic tho this could be as ive just finished radiation.                                                                Hope to hear from someone on this same drug..........cheers annie xx

 

  • Just wondering why you are taking this instead of the usual Tamoxifen?

    Julia

  • Hope all is going okay for you..  I've been on it for almost 4 years and on my last visit to the Oncologist was told that latest research suggested 10 years worth of treatment instead of 5.  OH JOY!!!!!!!  Joint swelling in the elbows/shoulders/wrists/knees and ankles.  Genuine pain in the elbows especially at night. Numbness or tingling in extremeties.  Thank God for fluid tablets to reduce swelling in the warmer months and painkillers for other times.

  • How are you going Annie, hope the side affects of that new drug have settled. Not a nice feeling having all this pain when your healing 

    Hope it has eased up , good luck

    jo xxx