Forum Discussion
jbw
12 years agoMember
Hi Emily,
Hope you are ok but sorry to hear of your trials, it is a crazy and trying experience. So great to hear that they believe any concerns are benign. It seems quite common to have changing assumptions/diagnosis and I've found that once all the tests are completed you can deal with the final result - until that occurs it is an up and down test of patience! Take some comfort in your most recent result as no doubt you are slowly getting more specialists involved who know what they are doing. Don't be hesitant to ask for a second opinion to ease your mind. I was diagnosed at 29, now 37 (OMG!). I am sure all will be well, if anything changes feel free to chat - having shared experience makes it easier to handle especially with those who had the same concerns at a similar age. Deep breath and wishing you well.