@Romla My ankles started aching on Day 4 and haven't stopped, though the pain ebbs and flows in strength, some weeks are better than others. I can't make rhyme or reason of it. Seems unrelated to exercise or no exercise, or temperature.
It's made me very dry (skin, mouth, eyes) including my bowels, so constipation is an issue.
Worst of all is the increase in strength and number of hot flushes, now also sweaty, especially at night. And with the new side effect of sometimes feeling as if I'm being painfully pin pricked on my hands and forearms for as long as the hot flush goes on. They wake me up repeatedly, up to six times a night, and ocasionally more. This is making me very, very tired. I want to return to work next year (medical admin) but I would be incapable of doing that on the amount of sleep I'm getting at the moment.
My oncologist has quit so I'm currently working with my absolutely wonderful GP on getting a handle on these problems.
I can manage OK with all of them except the sleep. The others are uncomfortable but the sleep deprivation is making my life and the life of my family sub-optimal.
But I'm not stopping. I'm doing everything I can to stop it recurring or metastasing. No regrets.
Thank you for asking. K xox