Disappointing

Hi Amy,  sorry to hear your news isn't better.  I know how you feel about the vital organs part.  That is a big part that helps me reset myself.  I was on Femara for about 18 months.  Same sort of side effects as with Tamoxifen (which I was on for nearly 4 years.)  I didn't experience much more than the hot flushes.  The only other thing I felt with Femara was I just never felt comfortable on it.  I really can't put my finger on it but deep down I think I was worried that it wouldn't be as good for me as the Tamoxifen had been.  Who knows, we can keep on guessing can't we.  I am on Aromasin now and have been since the 29th June so I will see how that goes.

It is really strange feeling so well especially when they have told you that you have mets.  You think you should be feeling so terrible and yet you don't.  I drive my onc nuts when I bring that up every now and then.  I know that the year I was diagnosed everyone in my family had the flu so badly that it was lasting two weeks or more for them.  I got a cold for two days and bounced back and was looking after all of them.  I just thought if I was really sick then I wouldn't have bounced back so well.  So there must be a hidden strength in us somewhere.  I'm sure people wondered if I had cancer for the first five years too.  I didn't look any different or act any different.

With the lymphodema try and raise your arm up and push the fluid towards your shoulder.  I have a small bit near my elbow and I eventually got into the clinic.  If you look on google there are lists of exercises you can do for it.

Good luck with your radiation and let us know how you go.  Take care and I am thinking of you.

Tracey xx