Forum Discussion
I have just read about your son and one of my daughters had a similar diagnosis around that 20yrs mark. She used to get very annoyed with visitors coming and if they did so unannounced-well.......They like to be prepared and don't like surprises. I would just talk with your son and ask him what he could do- put the ball in his court so to speak.He is probably highly intelligent and can work it out.Maybe it would be a good thing to cut back visitors abit? My daughter used to go to her room alot as she is not one for socializing.She prepared by taking food in.My other daughter is the total opposite so I've come to accept and respect their individual personalities and querky ways.They are 26 and 28 now.
I can fully understand how you've lost confidence in tests.It is so scary going for those body and bone scans.You feel sick to the stomach waiting on the results.Mine came back clear and I felt I had won the lottery.Try not to think too far ahead -the what ifs can become overwhelming.However,it's good to research and get all the facts.Loss of control and waiting are the 2 hardest things in this journey I think.Once we know what we are dealing with then we can usually get our head around it and be proactive.Each time I have found it to take about 2yrs to get some confidence back.It's still a worry but I'm able to shelve it now.Tamoxifen seems more tolerable if you are through menopause.It's been around for over 25yrs and so it's one of the safer drugs.I've been on it for 2yrs now and no problems apart from some hot flushes.Compared to chemo,it's a walk in the park so don't worry about Tamoxifen just yet. It's only natural you'd be tired as you had surgery last week so take it easy and rest up ++++. Have you ordered "my journey kit"yet? It's great and info is straightward.All the best for tomorrow.
Tonya xx