Forum Discussion
Hi msowl
I am so sorry to hear you are having to worry about your son because of visitors. He must be doing it tough, poor luv. Maybe if you have the sort of relationship where you can sit down with him and talk about having all the visitors and ask him how he feels about that and about you going through this journey again....... He probably felt he was going to be there to support you through this journey which gave him a purpose but now all these people are coming and taking that away from him. You are lucky to have so much support but as long as they are helping you and not just tiring you out which happens. Your son will be frightened and angry and going through as many emotions as you. I believe it is hard for us but it is even harder for our loved ones. Hopefully you can talk with him and work it out together and let him know you need him to be there for you and be strong for you (it might be what he needs to hear) or if you can't then maybe someone else he can relate to can talk to him about it. I might be barking up the wrong tree but just a suggestion.
My son who is 32, married and they have lil precious toddler of their own pretty much went in to denial of the whole thing. I hardly ever heard from him but when I did not one word was mentioned of BC or even a question of how I was going. That was his way of dealing with the whole thing. Him and I unfortunately have never had a strong relationship but I love him so unconditonally and I guess deep down he loves me as well just doesn't know how to show it. He has never had a true diagnosis but I think he has struggled with Aspergers (spelling) throughout his whole life and still does to this day.
If it makes you feel any better I not having a very good day today either, I can't cope with having no energy, the fatigue is killing me. I know I will get back there but the waiting to be well is tough. I tell myself it is okay to be down and tired and fatigued.
The main thing that has helped me every day to get through this journey is that I tell myself that everything that is going on is only temporary. It does get better and it will for you as well.
Just take it day by day or even hour by hour if you have to. That is what I do.
Freinds do manage to give you a boost most of the time don't they.
Chin up chicken, we are here for you.
Mich xoxo