Did you have trouble getting diagnosed?
How were you diagnosed with lymphoedema?
I was given referrals to 2 private hospitals, one of which had an early lymphoedema program at my first post hospital visit to surgeon following lumpectomy ...
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i feel that i have been really fortunate. I live in a rural area (sth west vic) and at the time of my surgery/following treatments (I have continual treatment for secondary cancer) i had access to a wonderful lympho massage therapist who specialised in the 'vodder' method..this kept everything under control for wuite a long time..a few months ago she moved interstate & i have really noticed the difference..i do a lot of manual drainage via massage that both my hubby and i do to help the flow...also squeezing a stress ball slowly is good too. Perhaps get in touch with the lympho association in ur state to get the contact details of someone who can at least help u with masssage..i have had massage done by others that were supposedly trained inlympho and they seem to be okay...but no where near as good as my old therapist using the vodder method-highly recommend finding a therapist trained in that..
good luck..i know it can be painful for me at times and i only had 4 nodes removed and feel i have it mostly under control
Sam :) xx