FD
14 years agoMember
Diagnosed yesterday
Hi
After what feels like forever when in reality it has been 7 weeks from first core biopsy I finally have what I have felt in my gut since first being told ADH border line DCIS confirmation of DCI...
Hi Chris
Thank you for your reply, yes I am praying it has been caught early. I have just lost some faith in what I am being told. I have gone from ADH borderline DCIS to just hyperplasia (impatient surgeon obviously pressed for time but I am told she has been reported to the Medical Director as I should have never been told that) back to ADH to confirmed DCIS. From the get go my treatment plan was to remove all risk by having bilateral mastectomies. Each medical professional I saw told me I was being extreme one even mentioned that they don't remove an arm for a lump. I couldn't believe she could compare the importance of an arm to a little saggy boob that was no longer required for child rearing. Now here I am being told the recommendation is a mastectomy of the right side due to the size of the area to the size of my breast. Not sure how others feel but I thought I was experiencing worst case scenario and had prepared myself mentally for that. Now to be told what I originally asked for is the suggested treatment plan is like learning all over again. It also makes me think it has in fact spread to the areas where I do feel pain (breast bone under my right breast and down my right side) I have seen a GP about this problem previously but I was told this is a common joint and muscle to experience pain. The thing is it doesn't ever go away. I only went for a mammogram, this was my first because a GP not my usual as she was on maternity leave decided it was a good idea now I am 40 and due to family history. I wasn't even the slightest bit worried so it really was a bolt out of the blue. To hear your story has helped me to think if chemo is necessary I should be able to do it. I still don't know if what I have is hormone dependant and nobody has mentioned taking medication after. I guess I will know more after the mastectomy surgeries booked for the 30th. I don't suppose you know if they do further pathologies on all the tissue removed?
Today is my husbands birthday so I had better go and spoil him.
Thanks again your story is one of those inspirational fabulous ladies I had in mind on my first post.
Lara xx