Forum Discussion
- jackie_4MemberDiagnosed April 2016 - Surgery in June (Bi Lateral Mastectomty) followed by Radiation treatments x 25.
The only time during the process that I had a meltdown is when I was told I DID NOT need to have chemo.
I was totally prepared for this to be the next step and was told by a couple of nurses that chemo would probably be needed.
Having been diagnosed with Lobular Breast Cancer I was told that my cancer did not react to chemo.
The one thing that reassured me was when my GP turned his computer screen towards me in his office and showed me the list of approx 20 names (surgeons, nurses, oncologists etc etc etc) that had jointly discussed and agreed on treatment for me. Yes they do not know me but I am confident in their joint knowledge and experience is my best interest.
Think they thought I was crazy when I broke down in tears when told I did not need chemo - that is good news they said.
On Letrozole for the next 5-10 years and am experiencing a few side effects but hey, better than the alternative. - Sunshine0206MemberI’m not a “lamb”. Perhaps that is not the best choice of words.
- TennilleMemberI'm not a 'lamb' and I am metastatic. I actually cried when I was made to take a week off from chemo due to illness. 'Why?' you may ask because it's one of the things keeping me alive and healthy so that I can raise my kids.
- kmakmMemberTell us a little about your diagnosis if you'd like @Kagisha. What stage, grade, size etc? It might help us understand a little better, and to not worry about you so much!
- AnonymousI’m not a lamb either and am alive nearly 3 years after active treatment. I wonder if you are on here because you are still questioning your decision not to have it. Hope it works out for you.
- AnonymousThe user and all related content has been deleted.
- SisterMember@Kagisha I think we have all made our decisions about treatment based on advice from professionals and many of us have done our own research as well. No-one is questioning your right to make your own choices - I think everyone just wants to be sure that you are making those choices from an informed perspective. No-one goes into treatment lightly and while some may not question, many of us have done and then decided - no lamb here, either. Good luck with your plan - I sincerely hope for the best outcome for you.
- Kiwi_AngelMember@kagisha - I think that everyone on here has been very diligent in choosing the best decision from them based on their own research and advice from professionals. I don't believe that anyone has been a "lamb"
- KagishaMemberI certainly did not want to challenge anybody's decision. I have decided based on my case, my pathology, my body feeling not to have it. It is good to keep one's eyes open, don't be a lamb just because you have been diagnosed with the dreaded BC.
- iserbrownMember@htav
Our @SoldierCrab has put this list together - I hope it helps you to understand where you are at and to get resources to help youBelow are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet.
It can be a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time.
The what and how thread.
http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1
Breast Care Nurses
https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx
My Journey Kits and other resources.
https://www.bcna.org.au/resources/
BCNA Helpline 1800 500 258
If you have any questions, concerns or require any further information or support please call 1800 500 258. The Helpline is open Monday, Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am till 9 pm EST.
How to understand your pathology reports
https://www.bcna.org.au/understanding-breast-cancer/types-of-breast-cancer/
Take care