Forum Discussion
Chrismar
9 years agoMember
Debilitating joint pain
Good morning, I'm new to this group and I'm wondering if anyone else is suffering from body/joint pain since treatment. I don't know really what has caused it but I didn't have it before I started treatment.
At first the oncologist thought it was from the estrogen blocker but I have been off it for a month and I still have it.
I have tried several types of pain meds but nothing stops it.
I'm now going to a physio therapist but it isn't having any effect so far.
Does anyone else have this and if so what are you doing for it? Do you know what is causing it?
At first the oncologist thought it was from the estrogen blocker but I have been off it for a month and I still have it.
I have tried several types of pain meds but nothing stops it.
I'm now going to a physio therapist but it isn't having any effect so far.
Does anyone else have this and if so what are you doing for it? Do you know what is causing it?
28 Replies
- iserbrownMemberI too suffered from Fibromyalgia - long ago, after a spinal operation. It was when there wasn't all this easy access to vitamins and magnesium. My specialist recommended magnesium and other stuff which I can't remember now, he used to make up a concoction for me in powdered form. In my view magnesium works a treat for aching joints.
I live on acres and we have cattle - just to be clear, I am not comparing anyone here to cows however, we had one that was down for the count (unable to stand up) and we were encouraged to give her a combination of magnesium and arnica tablets (extremely tiny little things) - we would mix it in with molasses and Lucerne - along with an injection from the vet (which we administered) she came good. Animals know when you are helping them and reward you in return. Paddocks in the winter down here shut down as it is too cold for any growth and nutrition is locked out hence we need to be mindful with salt licks and hay and or Lucerne (for special occasions).
Just like us if you don't get the right nutrients you run out of energy.
Side tracked I know but anyhow wanted to say magnesium, I think, works a treat
Take care - melclarityMemberMy first lot i got from a kinesiologist then i saw a naturopath so i get one specifically through there its like a scoop in water daily. Ive never bought it at a chemist. X
- ChrismarMemberThank you again. How do you know what quantity of magnesium to take?
- AnonymousNot applicableWell said Melinda, I agree time is the best healer. I have heard magnesium is very beneficial.
- melclarityMemberMagnesium is the most basic that everyone should be on. It services over 300 enzymes in the body at a cell level for rejuvenation. Ive been on it 16 months since finishing chemo. Meds exacerbate the pain but the only thing is time that will help as the body has to repair from the ground up. We only realize the depth of chemo impact after the fact. For some its a long road back years. So i know everything im doing absolutely will lead to success and a happier me
- TennilleMemberTry Chondraplex its got Glucosamine in it and Ultraclean which is high strength fish oil. Both are made by BioCeuticals which is a slightly more expensive but better quality natural product found in Pharmacies.
- AnonymousNot applicableI had joint pain after chemo, particularly in my feet and lower back. My feet were so painful in the morning, it was tough to walk on them. I've given up all drugs and I'm no longer in chemo induced menopause. The pain I experienced has gone so it must have been due to a combination of chemo, Tamoxifen and menopause. Pilates and walking daily have helped to build strength and get on top of the pain too. I feel like I did before chemo, but tired. My quality of life is so much better. I'm not encouraging anyone to give up the drugs, but it's been interesting to go from quite a lot of pain to being almost pain free.
- ChrismarMemberThank you, It all sounds so familiar guess I will take the Tamoxifen now and see what happens. The Never Ending Story!
- melclarityMember@BoraBora I did that exercise with my Oncologist, he pulled me off Arimidex for 6 weeks but had to go straight back on it regardless. I kept a diary and I was improved but he did say it would take 2 weeks to know and it did. Within a few days of going back on it, the pain seemed to flare again. I'm now switched to Aromasin, but it is EXACTLY the same! I've been seeing an Exercise Physiologist for about 8 months now, and we had a really good talk yesterday about it all. She believes it's the chemo more than anything, she said it attacks absolutely everything in the body, the sheath that goes over the muscles throughout the body, it shrinks causing cramping and pain alot. She's had clients torn their fascia muscle in their leg because it shrinks. The meds make no difference to my hot flushes, I was getting them in chemo before I started meds and they didnt alter off Arimidex uuugh!!! So the meds do attack joints, that's their biggest problem and it seems with combination of damage from chemo this seems to be where I'm at. She did say it will improve, so she gave me this spikey ball that when Im sitting to run each foot across it, it hurts! but its about stretching the tendon as chemo disintegrates the collagen in the foot. OMG crazy isn't it? she believes in time it will all come good though. I have good and bad days, no two are the same. Hugs Melinda xo
- BoraBoraMemberWas on Arimdex for only 7 weeks and stopped due to side effects, in particular joint pain in hands. It has been about 10 weeks since I stopped and pain in hands is worse (I also have trigger thumbs & insomnia). Arimidex is suppose to have a half life in body of 8 days but it obviously can impact some people much worse than others-hot flushes have decreased significantly, just hoping that pain etc will gradually subside. My GP has ordered blood tests to check for any other causes but everything I have read about Arimidex points to it being he culprit.