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Jooleewoolee's avatar
15 years ago

DD-Day...

I know it's been a while, but there's been lots of "stuff"! Well it probably hasn't been that long, but time is somehow warping around me, distorting days & weeks, giving me the sense of time passing, yet yielding a sense of not really achieving very much! Ah well.

My surgery date's been set, from hereon referred to as DD-Day.  I will bid farewell to my DD-cups on August 17.  I've had about a week to get used to the idea of surgery, and I've decided that I'm infinitely more fortunate to be having reconstruction performed during the same surgery!  Bless those surgeons... Surgeon #1 will take them off and step aside while Surgeon #2 will insert "pockets", which will be topped up with a saline periodically over the forthcoming months, to ultimately yield an agreeable "volume" (his term, not mine!).  At this time, a few months down the track, another (smaller) surgery will be performed to remove the pockets (I think!) and insert the silicon. Voila!  Sounds easy, huh? I'll get back to you.

The easy bit is having the reconstruction and mastectomy together ~ I can't imagine how difficult & uncomfortable I'd feel about having a mastectomy looming ahead with no reconstruction-carrot being dangled in front of me. I know everyone's different, but maybe I want to hang onto these womanly symbols, even if they are silicone.

Remember that scene from the Steve Martin film LA Story (showing my age!) where he's fondling Sarah Jessica Parker's breasts: after a pause and puzzled look he says "wait a minute, these feel wierd", she beams at him & says "yeh I know, they're real!"  Love it.  Must remember to drag that film out :)

And while I'm at it, I might pull out a copy of Sex And the City 1, just for that scene where the girls have all whisked a devastated Carrie away to some Mediterranean haven, where basking in the warm Mediterranean sun Samantha is horrified at x's non-preparedness for bathing attire vs. bikini line.  I think you know what I mean.  You've gotta laugh.

Since my last post I've found out that Chemo will start as soon as I've healed sufficiently from surgery ~ anywhere from 4-8 weeks post-surgery.  And it's only going to take two weeks after the first session for me to loose my hair! For someone used to procrastinating, that's pretty swift!  And did you know that NO hair is spared?  So while I may not have to worry about which hair-mousse to use, I'll also be spared worrying about waxing my legs, my underarm, even my eyebrows.  In fact, I won't even have to worry about mascara!  OMG ~ that's what I'm really going to miss; not looking forard to that one!

Funny thing is, a few months ago I purchased a hairdressing voucher entitling me to a style cut & blowave, scalp treatment and full head of foils! Wow, imagine that! Impecable timing!!  At first I thought I might give it away (expires this month!), but now I recon I might give myself the works; for someone who hasn't dyed her hair is ages, a full head of foils will be the perfect antidote for fearing flat hair in hospital. I'm serious! Anyone with fine hair will appreciate where I'm coming from.  And even tho its all coming off a few weeks later, there's still room for a bit of fun, a bit of colour! 

And if you happen by my hospital room, maybe you could offer to boof my coiffure; I'm not sure I'll be able to raise my arms to get there!

 

 

 

8 Replies

  • yes I agree, this hits hard to those who care about us. There are support groups out there for them. :) but my hubby would never go lol... but I told him whenever he needs a break, just dump me at my mums n go out with friends or whatever, he was like ok.... hasnt done it once, he is a great carer. they should be known as cancer survivors too lol.. they are truely amazing! 

    (I know not everyone is lucky to have this kind of support, & I know some hubbies dont stick around, so sorry if this hurts anyones feelings)

  • My hospital stay is a little blurry (hoped up on so much drugs n all) but will tell u what I remember. 

    Was in for 3 nights. had a single masectomy and start of reconstruction. had a drain in (that stayed in for 2 weeks) and had hospital leggings on & leg massagers on. I did have jammies that had buttons at the front and bra's that did up at the front too... during the days if u wanna wear clothes also take shirts that do up at the front. the first night nurses had to help me to the bathroom because i was still attached to machines lol... pain isnt too bad while ur in hospital, but u may have some side effects from the drugs they feed u :) Tell the nurses everything & also the 2nd u get any pain - tell them.... take a couple of things to do that dont require a brain - i took a portable dvd player and some gossip magazines... also had a tv in my room :) 

    I could not reach my hair in a comftable matter for about a week... but i did have the other arm i could use :( they give u so many drugs so u can move around and do normal stuff the best u can, & they tell u to try certain things - aslong as its not heavy lifting or anything strainuous... 

    after I got home that week was a bit of a blur too... anxoius about results prob didnt help lol... i would just wander around the house, couldnt concentrate even on the tv long enough to keep me still. had alot of naps but had to be awake at certain times to keep up to date with all the drugs lol, so wasnt getting much good sleep. 

    I didnt have to have chemo as my surgeon wouldnt suggest it for my rare type of breast cancer & so I am one of the lucky few who skipped that... lol... & they also didnt take out any lymph nodes (long confusing story) so now real long term side effects for me but I still got the chemo brain lol and all the fatigue etc, I'm booked in for my next surgery sept 6th where they take the tissue expander out and put the implant in ... wooohoooo! not over yet a couple more minor things after that then should be getting back to life :) 

    Looking back now, amazed how I got thru it all with my sense of humour in tack, but I admit I have had my bad days and its been a constant battle. but you'll get thru it ! Just concentrate on 1 thing at a time and get thru each moment of each day and then in a couple of months someone will ask u for advice and you'll look back and think wow, I lived that, I survived! Look at me now! 

  • Amazing how many women are going thru this thing? I'm finding so much support & encouragement from women like you who are sharing their experience of their reconstruction & chemo...  thanx for taking the time, Dette... I'm sure it's not always easy to get on here & explain how you're feeling or what you're going thru when you're right in the middle of it.  Easy for me to keep my chin up before the proverbial hits the fan (so to speak ) , so really admire you for sharing at this point in your treatment.  Love the fact that you're 1/3 way there... good on you!!

    And I think it's also a really difficult time for partners ~ we might be the ones with the Cancer, but they're the ones left running the household, looking after family, supporting us & acting as chief communicator; at least that's how it is here (altho I'm not doing a bad job at communicating!).  In a sense we have the easy job, cos no matter how long the surgery, we're out of it, but hubby's there nibbling his fingers, waiting to see us.  We're all getting lots of hugs in this house ~ sending a big hug to you too & wishing you a smooth ride over the remaining 2/3 :)  Julesxxx

     

     

     

  • Oh Merylee, you're fantastic ~ thanx for posting & for offer of support... I'll let you know what happens with the hair (that's next week's job).  If it's not too much trouble, would you mind telling me a little about your hospital stay? How long were you in there, did you have a dbl mastectomy, did you wear jammies with buttons, and could you reach your arms up to do your hair?  These are all vital (if not vain!) questions. But sounds like you're in the throws of Chemo, so wondering how it is for you?  Will totally understand if you don't feel like replying ~ at least for a little while... cos after then I may hound you :) (in jest).  Look after you, sending you an e-hug.  Julesxx

  • I love your sense of humour and am sure that and the fact that you have a clear plan will hold you in good stead.

    I also had my reconstruction at the time of mastectomy and for me it made a huge impact from the moment I went with that decision. (My husband wasn't so sure when it ended up being a 5-6 hour surgery as opposed to the estimated 3-4!!) Although my post surgery recuperation may have been a little slower and so chemo didn't start until week 7, I have not regretted that decision - must admit I have only had 2 of 6 chemos but then that's a third of the way.

    Go for the hair treatment - nothing like a great head massage, etc and then it could be a precurser to a new style wig!! Mine is now falling out so fast that it is the floor lining that annoys me not any stray strands across my face or forehead!!

    Good luck with it all and take very special care, Dette xxx

  • best of luck with it all. you sound prepared and ready for the " fight". ( as best you can be )  are you having a double mastectomy and reconstruction on the 17th august?

    hope you do not get too many" bumps" along the way, except the ones you want.

    kathy.

     

  • I'm having the same reconstruction at u. I'm a couple of months ahead of u, so if u have any questions or need to know anything, just ask!!!! 

    Go crazy with the hair I say, do something funky and fun! :) 

    Good luck with Chemo and everything else.... 

    Love ur attitude, ur posts always make me laugh! Great sense of humour! 

     

  • I'm having the same reconstruction at u. I'm a couple of months ahead of u, so if u have any questions or need to know anything, just ask!!!! 

    Go crazy with the hair I say, do something funky and fun! :) 

    Good luck with Chemo and everything else.... 

    Love ur attitude, ur posts always make me laugh! Great sense of humour!