DCIS

Hi! I was also diagnosed with high grade DCIS after a mammogram picked it up mid august, two days later a VAB, Dr rang that night to see my GP for a referral to a surgeon who got me in the following day to see my surgeon who suggested a wire assisted lumpectomy. My surgeon said all went well although the wire was not in the right position for surgery so my surgeon cut more than expected which resulted in a finding of LCIS. So in hindsight I was thankful for the mistake that was made as LCIS can only be picked up my an MRI. I was told in my follow up appointment I had the weekend to think about either more surgery followed by radiation and chemo, always to be monitored, or a mastectomy. The DCIS and LCIS were 7mm away from joining up, and told within 3-6mths I would be looking at invasive. I went ahead with the mastectomy 3 days later 27/8 and have recovered really well but I totally agree that the support wasn't what I was expecting as I feel not enough information is out there on DCIS and even harder on LCIS. I feel as though I didn't have enough time to investigate my options as I've been told that it was contained DCIS and had time to look into options like skin saving surgery, keeping the nipple and recon at the same time, so now looking back my emotions are up and down, now waiting on MRI results for my left breast, at least I am more knowledgable now and am blessed it was caught early but it seems a catch 22 situation in that it's not invasive cancer yet we end up with the same treatment as though we have invasive. x