DCIS
Hi - I was diagnosed with extensive high grade DCIS in late April and was advised that I would need a mastectomy to prevent the further onset of cancer. I find that there is little information about ...
Forum Discussion
Hi star - this is exactly how I felt with regards to my high grade DCIS and to this day ( after having a bilateral mastectomy and reconstruction that didn't go well do 6 ops down and implants removed all in the last 3 mths) I still don't know if I say to people I had breast cancer. This is why I started the thread DCIS and like you, I feel like a surgical patient and have little support from said breast care services. I've also called out to BCNA that a. More info on DCIS is needed and 2. Broader support for different emotional dealings associated with breast cancer matters would be great. I think we should call this out - change only happens through communication! In the interim, I'm gearing up for part 2 of reconstruction but doing better than i thought without implants. My plastic surgeon was very transparent as to how I would feel with implants, but again I agree there is litte readily available information for different stages of this emotional roller coaster. Finally - for those of us out there who have struggled with DCIS, are we and is it appropriate to say we had breast cancer??? What do u say? I know I didn't elect to have a mastectomy by choice....