My sister had BC at age 45 so I have been going to regular mammograms and ultrasounds. Since having my first mammogram at 40, it was noted that I have very complex breast tissue with fibro adenomas, papillary lesions, chronic cysts etc. Biopsies had revealed atypical cells and have had two previous lumps removed that turned out to be benign.
\nNow aged 44, I have recently attended my usual round of checkups where some new calcifications were noted. This time some new calcifications were noted at the mammogram, but nothing showed on the ultrasound. I was asked to return the next day for some biopsies. Eight core biopsies were taken and then there was an anxious 5 day wait for results. I met with the doctor on Tuesday and had a lumpectomy the next day. The pathology had shown High Grade DCIS. After yet another wait of 5 days, the results came back a few days ago. Whilst no invasive cancer was found there wasn't a clear margin meaning that the DCIS >3cm. More surgery is recommended to remove further tissue and more pathology. Following the lumpectomy radiation is recommended.
\nRadiation treatment is not available where I live and this would involve having to leave my family of 4 children (8, 14, 15 & 17) whilst I relocate to Brisbane (4 hours away) for 5+ weeks. (This would also mean I have to stop working for a while). My dilemma is that if at some stage I have a recurrence and require a mastectomy my options would be more limited for reconstruction. Apparently patients who have undergone radiation do not make good candidates for silicone implants. Three years ago I had major surgery to remove a large colon cancer, so using my stomach tissue is out of the question. I have heard of many back problems associated with taking tissue from the back.
\nMy doctor and hubby are not keen on a mastectomy, but I don't like the idea of being away from home for 5 weeks and still living with 6 monthly tests and very limited reconstruction options if needed later. I am also not sure about how health funds and Medicare would contribute to an elected mastectomy. The doctor agreed that a special MRI in Brisbane might give more indication of the extent of the tumour and identify any invasion. Unfortunately, this is not covered by Medicare unless you have 3 blood relatives who have had breast or ovarian cancer. I have decided to pay the fee >$500 but now have to wait until the right day in my cycle. (More waiting).
\nCan a lumpectomy with positive margins expose previously “protected” DCIS cancer cells to breast tissue and therefore promote invasive cancer?” My grade 3 DCIS is apparently the most aggressive.
\nWhilst I am feeling very anxious, many online documents state that DCIS is not classified as cancer... so I am not sure why I am so concerned.
\nIt is great to keep busy at work during the day, but I am struggling to get much sleep at night.
\nAny thoughts/ideas and comments would be great.
\nRachel
","kudosSumWeight":0,"postTime":"2010-10-06T10:57:34.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:77814_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":2},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"My sister had BC at age 45 so I have been going to regular mammograms and ultrasounds. Since having my first mammogram at 40, it was noted that I have very complex breast tissue with fibro adenomas, papillary lesions, chronic cysts etc. Biopsies had revealed atypical cells and have had two previous lumps removed that turned out to be benign.
\nNow aged 44, I have recently attended my usual round of checkups where some new calcifications were noted. This time some new calcifications were noted at the mammogram, but nothing showed on the ultrasound. I was asked to return the next day for some biopsies. Eight core biopsies were taken and then there was an anxious 5 day wait for results. I met with the doctor on Tuesday and had a lumpectomy the next day. The pathology had shown High Grade DCIS. After yet another wait of 5 days, the results came back a few days ago. Whilst no invasive cancer was found there wasn't a clear margin meaning that the DCIS >3cm. More surgery is recommended to remove further tissue and more pathology. Following the lumpectomy radiation is recommended.
\nRadiation treatment is not available where I live and this would involve having to leave my family of 4 children (8, 14, 15 & 17) whilst I relocate to Brisbane (4 hours away) for 5+ weeks. (This would also mean I have to stop working for a while). My dilemma is that if at some stage I have a recurrence and require a mastectomy my options would be more limited for reconstruction. Apparently patients who have undergone radiation do not make good candidates for silicone implants. Three years ago I had major surgery to remove a large colon cancer, so using my stomach tissue is out of the question. I have heard of many back problems associated with taking tissue from the back.
\nMy doctor and hubby are not keen on a mastectomy, but I don't like the idea of being away from home for 5 weeks and still living with 6 monthly tests and very limited reconstruction options if needed later. I am also not sure about how health funds and Medicare would contribute to an elected mastectomy. The doctor agreed that a special MRI in Brisbane might give more indication of the extent of the tumour and identify any invasion. Unfortunately, this is not covered by Medicare unless you have 3 blood relatives who have had breast or ovarian cancer. I have decided to pay the fee >$500 but now have to wait until the right day in my cycle. (More waiting).
\nCan a lumpectomy with positive margins expose previously “protected” DCIS cancer cells to breast tissue and therefore promote invasive cancer?” My grade 3 DCIS is apparently the most aggressive.
\nWhilst I am feeling very anxious, many online documents state that DCIS is not classified as cancer... so I am not sure why I am so concerned.
\nIt is great to keep busy at work during the day, but I am struggling to get much sleep at night.
\nAny thoughts/ideas and comments would be great.
\nRachel
"},"Conversation:conversation:77814":{"__typename":"Conversation","id":"conversation:77814","solved":false,"topic":{"__ref":"ForumTopicMessage:message:77814"},"lastPostingActivityTime":"2010-10-11T16:24:19.000-07:00","lastPostTime":"2010-10-11T16:24:19.000-07:00","unreadReplyCount":10,"isSubscribed":false},"ModerationData:moderation_data:77814":{"__typename":"ModerationData","id":"moderation_data:77814","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:77814_1":{"__typename":"Revision","id":"revision:77814_1","lastEditTime":"2010-10-06T10:57:34.000-07:00"},"ForumReplyMessage:message:77815":{"__typename":"ForumReplyMessage","id":"message:77815","conversation":{"__ref":"Conversation:conversation:77814"},"author":{"__ref":"User:user:2521"},"revisionNum":1,"uid":77815,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"subject":"Re: DCIS - If it is not cancer than why I am so worried?","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:77815"},"parent":{"__ref":"ForumTopicMessage:message:77814"},"body":"Wow I cant imagine how much your heads spinning so will try not to add further to it. I have had the dorso muscle (with implant) recon which failed, then tram flap which hadnt healed completely when i started chemo so it is damaged and now i have 1/2 a breast. the radiation didnt seem to do any damage to the breast and i had no burning. I do have back probs from dorso with a bit of spine curvature. i now suggest to anyone thats asks to have mastecomy, chemo, radiation then look at recon. I was 400kms from home too so just wanted to get it over with so i could get on with life, so I understand you situation. Having said all that I was recently at the 2nd conference for younger woman and spoke to a lady that had tramflap with a implant underneath it so has a full size breast. (something I wasnt offered) I was thinking if you check out the seminars from that conference (which is on this site) you may find more options that could suit you. I'm going to look into having the implant put in under my musle so i dont have to use a prothesis. Maybe the implant could be removed and then replaced if you ever had to have radiation as it sounded like a simple proceedure putting it in but maybe worth asking the question. Also having the muscle over the implant may protect it a little?? Is your sister available to help you with these decisions? if not a problem shared is a problem halved, this site is great for sharing and I'm sure you will get others ideas too. Hope this helps and good luck, Kaz
","body@stringLength":"1568","rawBody":"Wow I cant imagine how much your heads spinning so will try not to add further to it. I have had the dorso muscle (with implant) recon which failed, then tram flap which hadnt healed completely when i started chemo so it is damaged and now i have 1/2 a breast. the radiation didnt seem to do any damage to the breast and i had no burning. I do have back probs from dorso with a bit of spine curvature. i now suggest to anyone thats asks to have mastecomy, chemo, radiation then look at recon. I was 400kms from home too so just wanted to get it over with so i could get on with life, so I understand you situation. Having said all that I was recently at the 2nd conference for younger woman and spoke to a lady that had tramflap with a implant underneath it so has a full size breast. (something I wasnt offered) I was thinking if you check out the seminars from that conference (which is on this site) you may find more options that could suit you. I'm going to look into having the implant put in under my musle so i dont have to use a prothesis. Maybe the implant could be removed and then replaced if you ever had to have radiation as it sounded like a simple proceedure putting it in but maybe worth asking the question. Also having the muscle over the implant may protect it a little?? Is your sister available to help you with these decisions? if not a problem shared is a problem halved, this site is great for sharing and I'm sure you will get others ideas too. Hope this helps and good luck, Kaz
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I was diagnosed with her2 negative oestrogen and progesterone positive LC in early Oct 24 and have had two surgeries to remove a 9cm tumour and lymph clearance with one lymph node having 9mm of 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