Forum Discussion
I stumbled unto this site and have never done anything like this so am trying to catch up with everyone. I wrote my story on Elanye's page if you would care to read it. I was a nurse for 45 years before I retired and if does distress me that the nurse didn't listen. I had the physio in hospital Mater Brisbane when I had the lefty off then had a visit to the Mater Lymph clinic in Bundy between losing lefty and the chemo as I had 26 lymph nodes removed and had an irrational rear of lymphoedema and she trained me to do the lymph drainage myself which i added to the exercises the physio gave me. I don't have to do drainage on the right as there were no lymph nodes removed. I visited the lymph clinic every 3 months during all the chemo and radium then 6 months and now 12 months. 5 years out - with the bone mestestas but still breathing - I do the curves gym a few times a week - laps in the heated pool a few times a week (well I did before the pool closed for reconstruction but it will soon open again) the weights (2kg) and lymph drainage every day. I have never had a problem. You might consider when your lymphoedema settles if a lymph clinic/nurse/OT/physio would be willing to teach you how to do your own lymph drainage between visits. It is quite simple and does not take very long. I wear a sleeve when I fly. I have been lucky not to have had a problem so I am not sure if my remarks are helpful to somone who has been a sufferer. All the best. XX V