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EAA's avatar
EAA
Member
7 years ago

Contralateral Breast Cancer

Dear Sisters
About 6% of us have had Contralateral Breast Cancer.
Trying to find others to discuss any surveillance offered after second primary tumour hormone therapy ceased.
With a family history ,non BRACA 1 & 2 my self discovered second tumour notched me up into a high risk
category for advanced breast ca. What surveillance for early detection is available? Looking for similar
experience in others. We seem to be a rare unmentioned category! Thanks so much....Stay strong..

11 Replies

  • I recently have been reading about extended use of aramatose inhibitors (10years) and research suggests marked reduction in contralactel breast cancer and recurrence in ES+ breast cancers in high risk individuals.  It doesn't appear to reduce risks for future distance disease at this stage.

    My reading suggests distance disease is dependent on its initial pathology size (of either cancer) and lymph node involvement rather than new primary or local recurrence.

    I gather the surveillance remains the same as they are separate cancers (just friggin unlucky though)
    My Aunt did pass after a second bc diagnosis  (and ovarian cancer) hense my decision to remove both breasts to reduce risks of second primary. My risk of distant though remains as it did on diagnosis. The follow up remains...be self aware and follow up on any new or increasing pain or general unwellness. 
    I too am gene negative, but my Aunt was not. 
    If you google femera  5 or 10 years 
    you'll find many articles about research in this area.