Hi all, firstly I want to thank everyone for this amazing network. I was diagnosed in early August with what they first though was a very small malignant lump in my right breast. After a lumpectomy the lump ended up being 38mm but margins are clear and pathology is +ve ER and PR. HER 2 appears to be marginal and after 2-3 tests by different pathologists they think that there are some cells that are HER 2 +ve and some that are not. The frustrating thing is- during first surgery they could not find any sentinel nodes- the radioactive trace went no where and what the surgeon thought was a node in my axillar was actually an extra nodal mass. I then had CTs and Bone scan which were clear thank goodness. I then went Back to surgery for a ALND and again first path test has found no nodes BUT the tissue that was removed does show cancer spread to axillar tissue- all HER2 +ve. Surgeon has said I am the first that she has seen with this result, and she has been doing breast surgery for 30 years and is well respected in Geelong. I see my med oncologist on Wednesday. Surgeon is treating it as node positive but cannot establish how many nodes!!! has anyone heard of this before? Does anyone know what treatment they are likely to suggest when they can't do pathology on nodes?? thanks
","kudosSumWeight":0,"postTime":"2017-09-08T17:06:28.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:111836_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":281},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"Hi all, firstly I want to thank everyone for this amazing network. I was diagnosed in early August with what they first though was a very small malignant lump in my right breast. After a lumpectomy the lump ended up being 38mm but margins are clear and pathology is +ve ER and PR. HER 2 appears to be marginal and after 2-3 tests by different pathologists they think that there are some cells that are HER 2 +ve and some that are not. The frustrating thing is- during first surgery they could not find any sentinel nodes- the radioactive trace went no where and what the surgeon thought was a node in my axillar was actually an extra nodal mass. I then had CTs and Bone scan which were clear thank goodness. I then went Back to surgery for a ALND and again first path test has found no nodes BUT the tissue that was removed does show cancer spread to axillar tissue- all HER2 +ve. Surgeon has said I am the first that she has seen with this result, and she has been doing breast surgery for 30 years and is well respected in Geelong. I see my med oncologist on Wednesday. Surgeon is treating it as node positive but cannot establish how many nodes!!! has anyone heard of this before? Does anyone know what treatment they are likely to suggest when they can't do pathology on nodes?? thanks
","customFields":[]},"Conversation:conversation:111836":{"__typename":"Conversation","id":"conversation:111836","solved":false,"topic":{"__ref":"ForumTopicMessage:message:111836"},"lastPostingActivityTime":"2017-11-07T19:12:07.000-08:00","lastPostTime":"2017-11-07T19:12:07.000-08:00","unreadReplyCount":13,"isSubscribed":false},"ModerationData:moderation_data:111836":{"__typename":"ModerationData","id":"moderation_data:111836","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:111836_1":{"__typename":"Revision","id":"revision:111836_1","lastEditTime":"2017-09-08T17:06:28.000-07:00"},"ForumReplyMessage:message:111843":{"__typename":"ForumReplyMessage","id":"message:111843","conversation":{"__ref":"Conversation:conversation:111836"},"author":{"__ref":"User:user:19492"},"revisionNum":1,"uid":111843,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"subject":"Re: Confusion with path results after ALND- no lymoh nodes found","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:111843"},"parent":{"__ref":"ForumTopicMessage:message:111836"},"body":"Hi ac, great you have a plan and onc was so positive. Some find chemo harder than others so try not to stress to much, be kind to yourself, and tell your treatment team of any symptoms when they occur, they can usually be managed very well. I had a different chemo regime to you but I did have the 25 radiotherapy fractions to the same area you describe. I was able to call the nurse at any time if I had questions and the staff kept a very close eye on my skin. For me radiotherapy was easier than chemo but see how you feel. Just take it day by day, see how you feel and ask for help if you need it. You will come up with lots of questions as you process this and we are always here to help so well done for reaching out! So many of us have been where you are, or are even going through the same or similar things with you. With all my treatments, it helped me to think that the benefits always outweigh the risks or they wouldn't do it. Best wishes to you, Kate","body@stringLength":"964","rawBody":"Hi ac, great you have a plan and onc was so positive. Some find chemo harder than others so try not to stress to much, be kind to yourself, and tell your treatment team of any symptoms when they occur, they can usually be managed very well. I had a different chemo regime to you but I did have the 25 radiotherapy fractions to the same area you describe. I was able to call the nurse at any time if I had questions and the staff kept a very close eye on my skin. For me radiotherapy was easier than chemo but see how you feel. Just take it day by day, see how you feel and ask for help if you need it. You will come up with lots of questions as you process this and we are always here to help so well done for reaching out! So many of us have been where you are, or are even going through the same or similar things with you. With all my treatments, it helped me to think that the benefits always outweigh the risks or they wouldn't do it. Best wishes to you, Kate","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-09-13T00:21:49.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:111843_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1743643614981":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643614981","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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