I am sorry to hear the frustrations of your journey. You have conquerred so many challenges already; how strong you are! I haven't any experience in the cancer or the test you specifically ask about but it does sound like you need to ask for an interdisciplinary team meeting where you and all your specialists are there (or teleconference in) to discuss your options and plan forward all at one time rather than you going from one to another and being caught inbetween. Perhaps contact you cancer nurse to help you coordinate???
I am sorry for the stress this must be adding to your life and hope that you find answers soon.
Take care, MLE59