Hi joy
I too don't like to take anything for pain etc. i was amazed how quickly staff tried to feed me endone after my bilateral masectomy... You would think it was Lollies.. I did need it after my bilateral clearance though.
I told my oncologist yesterday about my bone pain on my first two taxols and she asked what I was taking. I sheepishly said nothing. She then explained she needed to know if my pain responded to at least panadol so she could adjust my taxol if necessary. I then discussed the impact on effectiveness if she reduced my dose. She said there is a large window for adjusting doses. I will see how bad the pain is next cycle. If it was only a few cycles I could tolerate it but I still have another 10 so may need to take panadol.
My oncologist gently reminded me that I need to listen to my body even if I become frustrated at not being able to do my normal things. I became quite seriously ill after my second chemo but told everyone I was fine. I took a bath to try and rid myself of back pain. When it was still severe the next morning I ignored it and only went to hospital when I had trouble breathing. I was diagnosed with bilateral clots on my lungs. My last scan showed they are still hanging around. My children are 22.19 and 16 and they all still live at home. They watch me very closely now. It is just the 4 of us and I promised them I will listen to my body and be sensible.
I am counting the days till 7th June when I will have the last of my 16 chemos. I will worry about radiation after chemo. I'm planning a nice weekend away with a friend in the blue mountains when chemo is finished.
Take care
Mel xxx