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Twiggyjumps's avatar
8 years ago

Chemo Side Effects

Every 21 day cycle. First round was not too bad apart from dreadful constipation and heartburn. Felt not flash for first 5 days then picked up and felt normal again. Hair falling out from day 13. 2nd round yesterday now feeling a bit queezy though. Heartburn and constipation under control. Feeling like I'm hungry all the time which is false as I'm eating well. Funny feeling in the breast that's like the chemo soliders are attacking the cancer! Like little odd feeling now and again. Anyone else felt this? Anne x 
  • I have read studies of them doing this to reduce cardiac damage and it seemed to show pretty much equal outcomes in the small trial group, especially if going onto herceptin. Did you do ACT ladt time?  I believe you can only do the C once.
  • Has anyone done just the A part of AC chemo...my oncologist says he's just going to start me on this as it will be less toxic for my body, one hit once a month for 6 months and then a course of taxol after that. Stage 4 diagnosis in 2015 after 15 years of remission with mets in spine, lesion on left lung and some liver spots...joy oh jo.y
  • @twiggyjumps yes, I got all sorts of weird pains and odd feelings.
    Sometimes the pains would start in one place in the morning and move around my head and neck area during the day, under my right ear and jaw was the main starting place.
    Part of it I put down to having only had the port a cath inserted a week before starting, so it felt strange too. I thought I could feel it in my neck and running down the middle of my chest, when I swallowed.
    I had a thumping heart too ( interesting to hear it was the Dex, no one told me that)
    I had strange  pains in the neck, chest and upper back, and screaming pain in the jaw one night that never happened again.
    Very itchy eyes for the first two infusions that are now really weepy, especially in the mornings.
    I suddenly started waking up with very sore patches under both arms on the sides of both breasts, massaging helped. I had both breasts reduced ( and lumpectomy) two months before starting chemo, but they were quite well healed and hadn't been a problem recently. Some mornings they are fine, some they are really sore.
    Oh, and lumps in the throat too especially with the first infusion, not nearly as bad with the second two.
    Mouth feels like a cats tongue, all rough and sandpapery, not sore though.

    So yes, weird side effects.
    I ran all of them past my Oncologist, some he had an answer for, some he looked puzzled and shook his head, he had no idea about them.
    I must say they were worst the first time, each dose after was much better, just the expected side effects like constipation  and nausea, not the really strange pains.
    Jennie
  • Anything with ginger in it will help. Gingernut biscuits, crystallised ginger, even the ginger sea sick tabs.
  • @Twiggyjumps Im like you only take Panadol and nurofen actually, so turns out Im severely drug sensitive, cant take painkillers at all as they make me very ill! I didnt cope with Chemo and unfortunately was very ill. I remember that strange hungry feeling, it never went away, I found I nibbled crackers to try help the nausea but nothing helped it. I was allergic to Maxolon. Ativan was something helped me and I actually relaxed and slept. Coloxyl tablets helped me for constipation and rinsing with salt water helped too for Ulcers. 

    Hugs Melinda xo
  • Yes thanks I did. I'm all strange today.  But getting a little relief now. I hate feeling this way. Never was into taking anything apart from the odd Panadol - anyway I just have to think this is what it takes to get rid of it. 
  • Twiggyjumps, so sorry you are sick. Ring your breast care nurse maybe. I'm about to start ac in another week or so and I'm petrified. Hope you feel better soon.
    Lisa.
  • Thanks. Feeling really sick this morning. Vomiting and don't want to eat yet. Trying to find the right moment to take something to ease it in between nausea bouts.:( last time this didn't happen. The Dexmethsone has been reduced as I was getting very red face and heart thumping. - not happy Jan!
  • I had achiness in my good breast after second chemo (mastectomy on other), so much that I had to have an ultrasound. Surgeon was unsure what it was. It settled down but then had it back after starting Femara so off for another ultrasound. She thinks it is the Femara this time. I ate all of the time too on chemo, craved salty food.
  • I ate continuously on AC (and taxol)  as I felt hungry all the time and heartburn was much worse if empty. (Mind you toasted cheese sandwiches were pretty much the only food that tasted okay) Can't say I had the breast sensation...they were gone by then however. It could be a nerve thing related to your gut...but hey if the terminator soldiers are doing there thing ...that's a good thing.