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donnafischer's avatar
10 years ago

Chemo is on its way!! (after a weekend mountain getaway & another horsey day)

My soul is fed by going back to my roots. It's impossible to explain the peace in my heart when I drive through areas that are few in vehicles and plentiful in trees, crops and stock. After one of my lowest weeks, we decided to grab the opportunity and flee to the mountains. The Bunya mountains holds a special place in hubby's family and his dads birthday would have been yesterday. So we packed his mum in the car and set off. The minute we turn off at Tiaro towards Woolooga my heart immediately feels lighter. It was a mad rush to get over there as I had my inititial consultant with my Medical Oncologist, then more blood tests and then sort out for an ECG asap. I'd forgotten I needed that test. Because chemo/radiation has a small risk of messing with your heart, they test it first to (a) make sure its in good nick and (b) have a base line to check back on. Hubby reckons I don't have one so I'm all good there lol. Going into the consultation with the oncologist I was so very anxious. I wanted this treatment to start yesterday. The fact that the cancer is now in the glands in my neck was freaking me out. The words rare and aggressive kept cycling round my head and I was back to the old way of thinking, am I going to survive this. Its funny how the bad stuff creeps in and the good stuff gets forgotten. I know its not in the bone or any of the main organs. I'd only just gotten those results. I guess I was a bit stunned to find out the second biopsy results of the neck. I'd completely convinced myself that the swelling / lump in the neck was a combined result of the initial surgery, the cold I had developed and the antibiotics I'd taken for a slight infection in the breast. So when I received appointments (out of sequence) that looked like I wouldn't be starting chemo for about 3 weeks, well lets just say I lost the plot. However, it has all been sorted, I spoke with my medical oncologist and he has already organised for my first chemo treatment to start on Wednesday 30th March. Hubby spoke with him while I was out of the room with one of the chemo nurses, and asked the question if we were to head to Brisbane to try and commence treatment sooner, would it be more beneficial and he explained that it would make no difference. Like my surgeon  this doctor spoke with considerable confidence, went over everything in detail to ensure we understood, answered all our questions and we left feeling once again, we were in good hands. So here's the outcome. My entire chemo treatment plan will last 6 months. It will be done in two stages ie, one cocktail of drugs will last 4 sessions then they will change drugs. This first session will be 1 treatment every 3 weeks. The first session will last 2 1/2 hours and will be delivered via a cannula. Because they only have the use of my left arm (remember because of node removal in my right breast, they have avoid damage to the veins on that side to avoid causing lymphedema in the arm) I will be having a port inserted into my chest for the duration of the chemo treatments. Basically it's a small disc that sits just under the skin in the chest. One end of the port has a small tube that will take my chemo cocktail and the other end connects to a large vein. This protects my veins from constant cannulation. I'm rather pleased about this. I dislike cannulas. Those buggers bite going in. So Monday will be our Cancer orientation/education appointment with our cancer nurses. They'll go through the procedure, the side effects (the main being hair loss 3 weeks after the first treatment, and fatigue - the others are possible side effects) we tour the unit and they show us whats what. That will be a bit daunting but naturally I have a morbid curiosity about it. And they will run through my at home care afterwards. April 4th is my date to have the port put in at the hospital. It's all getting a bit real now. I'm constantly being told "You look so well" and probably I am apart from a few faulty bits. But I will admit, I'm starting to get tired more easily these days. I napped most of the way home from the Bunyas. Hopefully its more stress etc combined with a bit of my lymphatic being out of wack. Being given a reprieve from surgery, I headed off for another horsey outing today while my gorgeous girl competed in her first hack day in a lot of years. For those of you who are interested my first regime will be these two chemo drugs - Doxorubicin (A) and Cyclophosphamide (C). Anyone who has experience with these, feel free to impart some advice.

 

 

 

5 Replies

  • Hi Donna my name is carrol and l had those 2 drugs for my idc after breast surgery followed by radiotheraphy .. finished treatment November 2015 ... you will be fine but the treatment is quite harsh .. be prepared to have someone home with you ... my sickness would start within a couple of hours after chemo treatment .? there will be a span of about 3-4 days when bed was the only place to be as even trying to talk was exhausting ...what helped me with the nausea was l took a natural ginger travel sickness tablet one in the morning one at night also sucked inbetween on candied ginger and ate green apples one first thing in morning and again  afternoon .. eat as you need them, and did not need the tablets the hospital gave me at all ..really kept my nausea at bay and never threw at all .. then after the first week slowy started feeling better the 2nd week then would feel good in 3rd week then time too repeat the cycle ... you will be ok and it goes quickly .. good luck my thoughts are with you and if you have any questions l would be more then happy to answer ????

  • Love the Bunya mountains and so cool in the summer. At least you got there before the Easter rush on the roads.

    After the mess they made of my veins on my 4th and final chemo dose, it is very wise for you to get the portacath done. I don't think you will regret it and the bonus is they can infuse the chemo drugs a lot quicker and painlessly on a nice big chest vein than they can with a little hand one.

    Make time now to get over your trip away and rest. I know its boring but you will need it.

  • Hi Donna,

    You are on the fast track now - keep a notebook in your handbag for your appointment and pre-chemo drug routine, where you can tick things off.  As Tracy says, chemo fog is very real, and it's hard to concentrate and remember things all the time.

    Your port will be your new best friend - it makes life so much easier for you and for the chemo nurses!  Mine was sore-ish for a couple of days but chemo was started immediately after it was put in and there were no problems at all.

    Can't help with AC as I had 12 weeks of Taxol & Carboplaten.  You will probably have a blood test before every chemo so make sure levels of everything are good to go.

    So glad you had a break in the country and feel rejuvenated. Stay in touch.  xx  Michelle

  • Hi Donna,

    So glad you got away to recharge! 

    I'm on a totally different treatment (FEC-D) to yours, so can't really comment on side effects, but the same pattern, one drug for 3, the other for 3 every 21 days....I will offer this though

    Rest, rest, rest! the housework can wait!....don't be afraid to say NO! Visitors can take a great deal of energy from you, even though you're only sitting and chatting!....Listen to your body....write down any concerns/side effects. The chemo fog makes you forget things!

    .....take care of YOU! Let your family and friends help in any way they can....

    and lastly ..... You WILL beat this! You WILL be OK!

    Wishing you the very best as you begin this phase of treatment. Love and light for easy recovery and beautiful days Xx <3 xX

    -Tracy

    stay strong|breathe|believe