@Nefertari I feel your pain as I have been "lost" in the hospital system, too. Mine was for rads setup not with something as major as a mastectomy and I should say that my issue was a bump in the road - my treating team were great after that. You need help with this - it's more than you can manage on your own. And it sounds like any reassurances you get from the reception people are going to be less than reassuring.
My suggestion is, document it (or get someone to help you if it's now too overwhelming) and take it to whoever the patient liaison person (hospital registrar?) is at the hospital with copies to your medical team. Be careful to criticise the process rather than the people (unless there are people you feel need to be criticised) as you're not trying to create ill-feeling but rather impress that the situation is untenable and that their systems and processes need reviewing. Emphasise how it has made you feel during an extreme health event.
Do you have a breast care nurse? I ask this tentatively as I know they are few on the ground and not always that great at helping but I gather the ones who are good, are really good. Or possibly contact the hospital social work team?
Others with more insider hospital knowledge may be able to help you with better advice but it's important that you go into this with full confidence that you are getting the best and right treatment. Public hospital should not equate to substandard treatment.
