Nefertari this is not whinging! I suggest you ask someone to partner you to your next meeting/appointment. This is just too much and enough is enough! I was very fortunate to have a very close friend with medical knowledge, who doesn't 'miss a trick' and will ask for clarity until we are both satisfied - she came to every meeting/appt. The 'folk upstairs', is it the hospital register, need to be informed of your appalling and extremely distressing experience. You are not complaining about a missed appointment for removal of a splinter! (lots of swear words!). Stay connected and keep sharing your experiences - it helps to off load and its also ok to have a complete meltdown.
