Thanks for the information and the pep talk, I needed it ;)
Things keep getting shifted around, cancelled or rescheduled adding to my confusion.
Out of all my appointments to Oncology, I have only seen the Oncologist twice, the rest of the time I have seen the nurse as he is always "double-booked". Public Hospital system.
It has never been a problem until now when I have neuropathy, and need to ask questions. At my last visit with nurse he popped in and decided to cancel the next two weeks (Cycle 7 & 8). I asked him then if I was to get more chemo - he said maybe something else? He said we will wait and see and discuss after my Surgeon visit.
Another Oncology appt was made for me on 7th May, to take place before my scheduled 10 am appt with the Breast Surgeon.
This Onc appointment was cancelled on Wednesday and an appt made to see the Registrar instead at 10.20 on 7th May.
I did remind them about my 10 am appt with the Surgeon in the same building. I do not want to miss that one as I have been four months waiting on that one.
They said he will be made "aware" of where I am. The appointments are never on time, waiting up to an hour or more is normal. So I can see a problem being just 20 mins apart.
Today I get a call saying that a chemo appt has been made for me on the 10th May, without any consultation from them about what type of chemo (not keen on paclitaxol naturally), also no one has been in touch to find out how the neuroparhy is? Hello it is still here with no sign of improvement?
I was going to cancel the Registrar but decided to stick with it but just emphasise the importance of seeing the Surgeon as I will ask him about the chemo, does that sound reasonable? If it is Paclitaxol, Im refusing that one.
