Forum Discussion

Jackie_Boyes's avatar
16 years ago

Changing Oncologist?

I am hoping to hear from anyone that has had to consider or has actually changed their oncologist.....

I have experienced some anxiety approaching appointments due to a receptionist at the oncology office, my mother-in-law and other patients have also experienced similar at the same office. I believe this lady likes to be in control and plays games with patients, for example when you come out of the doctors office she is always abrupt and is never friendly or smiles then she will start to process your payment info then she will ask your name, now, you have clearly just come out of the doctors room and she is almost finished the payment process, she knows who you are by then.....she really through a spanner in the works at a recent appointment when I arrived early, so informed them that if they were running a little behind, which they were, I would pop upstairs to the chemo ward and have my pre chemo blood test, this particular lady promised she would pass this on and I said that if for some reason it was going to take longer than expected the chemo ward would ring down and let them know. The blood test was fairly quick so I went back downstairs still well before my appointment time, to be greeted by a rather abrupt other receptionist with "there you are, your late" then the oncologist was clearly cross with me, I tried to explain that I had done my best to make sure I had done all I could and that the receptionist had obviously not passed on the message of where I was, I was getting frustrated as the oncologist mood was not pleasant, I decided to say something and subsequently burst into tears. This was the last thing I needed. I found out that she had been eager to get to a meeting in another part of the hospital, mind you, at this stage she still had half an hour to spare! Are these people frustrated with their own system and lack of communication and the patient gets caught up in the middle?

I then rang yesterday as I have been experiencing a few side effects from the Tamoxafin and wanted to make sure that all was ok. I left a message with a receptionist who said that the oncologist would ring me back when she got in that afternoon, now well over 24 hours later have still not heard anything. Am I expecting too much, surely if a patient leaves a message and is told she will get a call back that would not be unreasonable. If they had told me she was too busy and could not get back to me for a week then I could sort something out.....

I am contemplating changing my oncologist, any advice would be greatly appreciated. Is this an easy thing to do?

When people talk about "building a team" for our cancer journey we have been truly blessed, but these particular people don't seem to be what I had in mind as part of my caring team. We have experienced exceptional care on every other level so this experience stands out unfortunately.

I would love to hear from anyone who has been faced with this decision.....

I don't like to cause a stir, but feel like I am not getting the personal care I deserve. The medical treatment has been fine, but the anxiety I feel if I have to deal with the office etc is stressful to me and surely not helping.....

If not the oncologist who else should I contact if issues arise?

Cheers, Jackie.

3 Replies

  • Hi if there is anyone out there who would like a friend to help them through this disease I am willing to talk to you and help u through if I can
  • Hi if there is anyone out there who would like a friend to help them through this disease I am willing to talk to you and help u through if I can
  • Hi Jackie

    This is Kathy from BCNA. I haven’t had breast cancer and can’t speak from experience, however here at BCNA we always recommend women ‘shop around’ to find specialists that they like and feel they can trust. It is important that you feel comfortable with the people who are providing your care.

    It sounds like this is not how you feel with your current oncologist. You certainly shouldn’t be made to feel uncomfortable or stressed when you attend appointments.

    If you feel comfortable enough to talk to the oncologist about the receptionist’s attitude and behaviour you might like to try that. If she is treating you that way, you can be sure she is treating others that way too and the oncologist should know about it.

    Regardless of whether or not you do that, you would certainly be justified in looking for another oncologist who can provide the care and support you need. Your Breast Care Nurse or GP may be able to recommend some other oncologists in your area. Your local breast cancer support group would also be a good place to get some recommendations from other women.

    After looking around, you may decide that the oncologist you are now seeing is actually the one who suits you best. Don’t worry if this is the case. Specialists understand how important it is for women to have the right ‘fit’ with their doctors. They know that women will look around to find the specialist who suits them best. The fact that you have looked elsewhere should not affect the treatment and care you receive.

    Don’t wait too long for the oncologist to call you back about your concerns about the Tamoxifen side effects – give the office another call and let the receptionist know you are concerned and need to speak with the oncologist.

    Good luck, Jackie. You do deserve better care than you are currently getting.  Let me know how you get on.
    Kathy