Forum Discussion
Romla
8 years agoMember
Breast Density Workshop Adelaide papers online
https://www.informd.org.au/workshop.html
Hi all
Here are some of the papers from the workshop - some are not available eg Jennifer Stone on WA as research project as yet unpublished.The one’s I found most interesteing were the introduction by Wendy Ingman , the Legal prospective by BernadetteRichards and a Radiologist view by Mary Rickard.
Hopefully more will be uploaded soon as will a report from me once my twins 18th birthday festivities end.
Hi all
Here are some of the papers from the workshop - some are not available eg Jennifer Stone on WA as research project as yet unpublished.The one’s I found most interesteing were the introduction by Wendy Ingman , the Legal prospective by BernadetteRichards and a Radiologist view by Mary Rickard.
Hopefully more will be uploaded soon as will a report from me once my twins 18th birthday festivities end.
58 Replies
- kmakmMemberIt's certainly prohibitive for me @Romla.
- SisterMemberI wonder if it's tax deductible? :) After all, cancer's a full-time job, sometimes.
- RomlaMemberOn the Informd website on the conference registration page whilst consumers are invited the prices are prohibitive - early bird registration is $250 for example.
- kmakmMemberHi again @Mikey! My breast density story is on the BCNA's page on this subject. I have a particular interest and as I'm in Melbourne, would love to attend the conference to hear you speak. Do you know if that's possible? I've been to their website and it looks like medical personnel only.
I've read your paper. Excellent, congratulations. And I recognise the tone. When I get going on the subject it's the same.
My regards to Jean. I hope she is doing well. K - MikeyMemberHi folk, I am Mike Shephard, husband of Jean (JeanBean on this forum). It's fair to say that we were quite peed off at not being informed about breast density and we are now advocates for change to that policy. It was great to meet some of you at the Adelaide workshop where I presented a paper 'Don't Ask, Don't Tell - the breast density secret that changed our lives (but not in a good way)' - available on the INFORMD website. We were very grateful for the opportunity to do that - so thanks to INFORMD and BCNA. Will also be presenting at the Melbourne conference on 10 October from the patient viewpoint. Any suggestions or comments welcome, either on this forum or email to [email protected].
- JJ70MemberThanks you @Giovanna_BCNA for that link again to BCNA page. Good to re-read the finer detail again.
- Giovanna_BCNAMemberHello @arpie
Thank you for your post and for continuing this discussion. That is interesting information re SonoCiné AWBUS (Automated Whole Breast Ultrasound) by Dr Kelly. As you all know, BCNA is continuing to raise awareness of breast cancer risks in women with dense breasts. As mentioned on our website, if you are worried about your breast density please speak with your Doctor regarding the most suitable options for you. See thread below for more information
https://www.bcna.org.au/breast-health-awareness/mammographic-density-and-screening/ - Giovanna_BCNAMemberHi @Romla I have edited your post as requested
- RomlaMemberFor those interested there is an Australian organisation actively promoting the need to know about breast density on which Wendy Ingman sits.Its called informd.org.au
- RomlaMember@arpie Agreed that the WA letter should explain why it’s an issue but guess govt does not want financial responsibity for further investigation so pushing people back to their GPs.