Forum Discussion
kmakm
7 years agoMember
A letter to your MP, all the state health ministers, all the state shadow health ministers, the federal health minister & the federal shadow health minister. Get into social media, get people's stories. Know your subject inside out, have meetings with people who could support you. A petition. Approach every media outlet, from local papers to national tv. Talk to the private health funds about getting into their insurance coverage. Talk to oncologists.
I've banged on about this subject quite a lot here in the last year. I think a key plank to get this happening is the numbers.
There's a group that's clearly not going to have chemo, there's a group that clearly is and in between there's a group in the grey area where a genomic test would provide an answer. Studies showed that if everyone in the grey area group did a genomic test, 70% would not need chemo.
So...
1) How many people are in the grey area?
2) How much does chemotherapy cost the health system per person?
3) How much do the genomic tests cost?
With the answers to these questions you will be able to do the maths. And you'll know if the numbers are compelling or not. And if they are, you can bet a political party or two will pick it up as a policy...
A research doctor at the Garvan told me they were getting close to a genomic test being standard in BC treatment. When pressed she prevaricated somewhat and said while it is getting closer it was not going to be anywhere close to immediate. She said it's currently being trialled in leukaemia patients.
You might like to look at this:
https://www.australiangenomics.org.au/our-research/cancer-flagships/
I'd also contact the Cancer Council and see what they have to say.
Good luck Millie. I hope you can get something happening. K xox
I've banged on about this subject quite a lot here in the last year. I think a key plank to get this happening is the numbers.
There's a group that's clearly not going to have chemo, there's a group that clearly is and in between there's a group in the grey area where a genomic test would provide an answer. Studies showed that if everyone in the grey area group did a genomic test, 70% would not need chemo.
So...
1) How many people are in the grey area?
2) How much does chemotherapy cost the health system per person?
3) How much do the genomic tests cost?
With the answers to these questions you will be able to do the maths. And you'll know if the numbers are compelling or not. And if they are, you can bet a political party or two will pick it up as a policy...
A research doctor at the Garvan told me they were getting close to a genomic test being standard in BC treatment. When pressed she prevaricated somewhat and said while it is getting closer it was not going to be anywhere close to immediate. She said it's currently being trialled in leukaemia patients.
You might like to look at this:
https://www.australiangenomics.org.au/our-research/cancer-flagships/
I'd also contact the Cancer Council and see what they have to say.
Good luck Millie. I hope you can get something happening. K xox