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Hi just doing a browse and came upon your site. your blogs are good for me to read and I do hope you are all going well.
So far all is well for me, I had the lumpectomy done last September and dia...
Forum Discussion
Hello ladies,
Brilliant that I have found a group specifically about phyllodes tumors!
I have been diagnosed with a malignant phyllodes - very aggressive. I initially had a lumpectomy in April as it had been diagnosed a benign phyllodes , however when they got inside my 3.5cm tumor it was found to be malignant and I am advised it is the highest malignany rating. This required a wide margin ( 2-3cm) masectomy and removal of my right chest wall; this has then been treated with 30 sessions of radiation.
The lack of information is a bit frustrating and the things I have found on the web for malignant phyllodes are a bit scary - nasty if reoccurs.
I would really appreciate any information sharing you ladies might have on malignant phyllodes and also any details on TRAM flap reconstructions.( i.e. recommended Brisbane based plastic surgeons and recovery times)
I am Brisbane based if anybody is interested in meeting for a coffee.
Be well.
cheers and smiles....Jenn