Sarah_51
15 years agoMember
Arm paranoia
I have been absolutely paranoid about my right arm since surgery, thinking I would get Lymphoedema. Today I saw my physio at the hopsital for my post radiation arm measurements and I was so happy tha...
Hi Leonie,
Thanks for sharing your story, although not one that sounds all that positive. However, as you said you have your life and I have mine, so all the other "stuff" means we know how to "suck it up". Everything you have described I have, but I'm going to try and keep positive, as it's still only early days for me, so I'm hoping it will get better over time.
Like you, what was known as my "good" arm is not so good anymore. My veins are damaged because of what the chemo has done and due to the scare tissue caused by the DVTs. Using this arm is very limited. I've just finished doing the dishes and my fingers are now swollen and my arm has a dull throbbing pain. My poor arm is trying it's hardest to pump blood. I've been told that the chemo vein damage should get better over time, but the damaged caused by the DVTs will remain. On a vanity note I also have this very ugly patch of broken capillaries at the top of this arm where the DVTs were. So I try and find tops that cover that area, which is next to impossible.
I call my arms my broken wings and keep reminding myself how lucky I am. Not only am I alive and I know I will beat this, and I have a cleaner who does all the 'big' cleaning jobs around the house. How lucky is that...
Good luck with the orthopedic surgeon Leonie.
Julie